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New member -Not sure what to do now

449 Views 8 Replies 6 Participants Last post by  Mikiec
Hi my name is Michelle and I'm really looking for some guidance on my next move. I have recently been diagnosed as having had Kikuchi's disease which is inflammation of the lymphnodes. It is a self healing disease but it seems to have links with Lupus. Before I was diagnosed with Kikuchi's, I had been at my doctor with pains in my hands,knees and heels and have not had any joy in a diagnosis for this. The doctors are continually testing me for under active thyroid to try and explain hair loss (not severe but enough to make me worry) and fatigue. All these things point to Lupus.... What should I be asking my doctor for? I've read through a few of the posts on here and it seems that there are several people extremely frustrated with the doctors and the tests! Can anyone help or give me some advice on what to do?
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Hello Mikiec

Welcome to the site. I am sorry to hear you are feeling so bad at the moment. I was diagnosed last year with lupus and have found the guys and girls on this site really supportive with a wealth of knowledge and experience to share with you.

I hope you find the answers you are looking for soon and are feel better, don't forget you are not alone, we are all here to help and support you. :grhug:

Take care
Claire
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