New member -Not sure what to do now

450 Views 8 Replies 6 Participants Last post by Mikiec, Dec 28, 2008

Mikiec

Discussion Starter · Nov 22, 2008

Hi my name is Michelle and I'm really looking for some guidance on my next move. I have recently been diagnosed as having had Kikuchi's disease which is inflammation of the lymphnodes. It is a self healing disease but it seems to have links with Lupus. Before I was diagnosed with Kikuchi's, I had been at my doctor with pains in my hands,knees and heels and have not had any joy in a diagnosis for this. The doctors are continually testing me for under active thyroid to try and explain hair loss (not severe but enough to make me worry) and fatigue. All these things point to Lupus.... What should I be asking my doctor for? I've read through a few of the posts on here and it seems that there are several people extremely frustrated with the doctors and the tests! Can anyone help or give me some advice on what to do?

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Jesse88

· #3 · Nov 23, 2008

Hi Michelle, welcome. Here in the states the ANA blood test is most often used to help dx lupus, but it's by no means the only way. As Lola said, it can be very hard to dx and sometimes takes years. There are others here who can give you more complete information so hang around. There's lots of help to be had here.

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