hi Michelle im glad ive found you
Im sorry to hear that you felling unwell,
Ive just found this site & im glad to find people with the same illness as me. I was told i had kikuchi's disease in 2002, since i got ill ive had a number of different problems, ive never really felt myself again. I ve just now been told i have a heart condiction among a number of other things, just like you ive been teasted for lupus a number of times, the doctors feel that i have it but are finding it hard to catch, in the last 6years. They say it's not important to have it in black & white but i am presenting all the symptoms of lupus. It's very difficuilt to get people to understand why im always feeling tired, Ive had two flare ups of kikuchi's over the 6 years, the last one was in 2006, they say that is very rear, and since that time i have felt even worse.
Kikuchi's can affect people in many different ways and last for as long as it want's to, i know that mine is still there 6 years later and suffer with my glands swelling and fever at lest once a month. I've just been reffered to another hospatial up london called the royal free, as i need to get some more test done, ive been at my hospatial for six years and they really cant help me anymore, you need to ask to go to a hospatial that deal with rear illnesses and hopefull shead some light on your illness.
I would be intrested to know how your felling, and if you have anythink you would like to ask me please do as i have been living & going throught a lot over the pass 6 years that i cant even start to go into now.
Oh 1 more thing i am of caribean back ground but i do have a half spanish grandmother from which is where i thing i got it from, at the age of 32 she was told she had TB and another raer illness that they didnt know what it was in them days, she passed away when she was 33, in them days they didnt know what kikuchi's was. so you need to look into you family back ground and find out if they was anythink of kikuchi's back ground.
I hope i havent been to informative for you or scared you in anyway, but i know how you must be feeling now, just wanting to know what kikuchi's is all about, & it may in your case be a mild case or may go away. But you need to make sure that the doctors watch you very closley for several years to make sure other things dont develope from this.
I will speak to you soon take care of youself
Ainka
xxx
Hi MichelleMikiec;526784 said:
Im sorry to hear that you felling unwell,
Ive just found this site & im glad to find people with the same illness as me. I was told i had kikuchi's disease in 2002, since i got ill ive had a number of different problems, ive never really felt myself again. I ve just now been told i have a heart condiction among a number of other things, just like you ive been teasted for lupus a number of times, the doctors feel that i have it but are finding it hard to catch, in the last 6years. They say it's not important to have it in black & white but i am presenting all the symptoms of lupus. It's very difficuilt to get people to understand why im always feeling tired, Ive had two flare ups of kikuchi's over the 6 years, the last one was in 2006, they say that is very rear, and since that time i have felt even worse.
Kikuchi's can affect people in many different ways and last for as long as it want's to, i know that mine is still there 6 years later and suffer with my glands swelling and fever at lest once a month. I've just been reffered to another hospatial up london called the royal free, as i need to get some more test done, ive been at my hospatial for six years and they really cant help me anymore, you need to ask to go to a hospatial that deal with rear illnesses and hopefull shead some light on your illness.
I would be intrested to know how your felling, and if you have anythink you would like to ask me please do as i have been living & going throught a lot over the pass 6 years that i cant even start to go into now.
Oh 1 more thing i am of caribean back ground but i do have a half spanish grandmother from which is where i thing i got it from, at the age of 32 she was told she had TB and another raer illness that they didnt know what it was in them days, she passed away when she was 33, in them days they didnt know what kikuchi's was. so you need to look into you family back ground and find out if they was anythink of kikuchi's back ground.
I hope i havent been to informative for you or scared you in anyway, but i know how you must be feeling now, just wanting to know what kikuchi's is all about, & it may in your case be a mild case or may go away. But you need to make sure that the doctors watch you very closley for several years to make sure other things dont develope from this.
I will speak to you soon take care of youself
Ainka
xxx
