TheLupusSite.com banner

1 - 6 of 6 Posts

·
Registered
Joined
·
2 Posts
Discussion Starter #1
Just wanted to say hello. I am new to the boards as well as autoimmune issues.

I am hoping to get some answers or at least some clarification on what is going on. I have recently been told that I am borderline lupus. I have had numerous x-rays and MRIs trying to see if I have any joint damage (I guess). Everything keeps coming back ok. In the meantime I am missing days upon days from work because I feel so awful and am experiencing so many symptoms related to RA as well as lupus. Currently I am taking NSAI medication. It helped me for several weeks but the pain recently came back with a vengence.

Anyway, I am here hoping to learn more.;)
 

·
Registered
Joined
·
1,563 Posts
Dear Moonshine

Welcome to the sight and i am sure you will have lots of question.There is alot of information to get from everyone on here.There is so many wonderful caring support and ((((((((hugs))))))))to help you through everything you are going through.

Are you seeing a rhuemetoglist at all to figure out weather it is lupus or not.They are the ones to go to for proper treatment to find out if you have Lupus and get it under controp if it is lupus.I am so sorry you are having such a hard time with keeping up with work and life.I really hope things get under control soon or find a good pain meds.

Tammy
 

·
Registered
Joined
·
7,800 Posts
Hello Moonshine and welcome :)

If you have been diagnosed as having lupus I am surprised to hear that you have not been started an plaquenil which is a drug that can even out and reduce flares of the disease. It is a baseline drug which takes rather a long time to start working initially but which makes a huge difference to many people's lives. If that wasn't enough, there are many other treatment options which can provide significant relief.

It's great that you don't have anything coming up on MRIs etc. Many people don't but that doesn't make the disease any less debilitating nor the need for proper treatment any less. It is relatively rare for lupus to cause any joint damage and only sometimes causes swelling.

If you are not seeing a rheumatologist that specialises in lupus then that is definitely the next step. The other thig is not to "ignore" worsening symptoms and try to battle through them. The disease doesn't work like that at all and battling through will only make it worse rather than better. If symptoms have come back with a vengeance you should be on the phone to your doctor to do something about it.

keep us posted and hugs to you :hug:
Katharine
 

·
Registered
Joined
·
2,404 Posts
Dear Moonshine, Welcome Here, I can see you have already had good advice from others here. Just wanted to add my Welcome and reassure you that you will learn very quickly.
x Lola
 

·
elisabethm
Joined
·
512 Posts
:welcome: Moonshine you will be made to feel more than welcome you will get good advice from the site hope to see you on the site again Elisabeth
 

·
Registered
Joined
·
2 Posts
Discussion Starter #6
Many thanks to all of you for the welcome!

Yes, I am currently under the care of a rheumatologist but he is not very forthcoming with information. He just sends me my results via letters from the office and so it is extremely frustrating. It is also extremely difficult to get a hold of him on the phone too. I did contact his office today and was told by his nurse that they were going to send me to a pain management doctor. So who knows? I will also (when I eventually speak with him) ask about the plaquenil. Perhaps he did not prescribe to me because it is borderline lupus?

Thank you all again! I am so happy to have found people to share these experiences:)
 
1 - 6 of 6 Posts
Top