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Hello I am on immunosuppressants amongst other things. Never been able to kick the steroids though.

I take methotrexate and would recommend it, it can take a little getting used to but was worth it for me. Ihave regular blood tests, my Dr. just gives me a pile of ready signed forms and I go when necessary. You will have them very often at the beginning, but they generally space them out to monthly after about 6 weeks.

Sorry to hear about your Mum. Must have been hard for you.
x Lola
 

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Dear Carol, I have a friend on Aza,she works, writes books, has a two year old and travels a lot including to some fairly germ laden areas. She does very well.

Don't forget some Lupus patients are much better after the menopause, that may explain them not being immediately obvious to your Husband.

If he wants to post here as a relative he will be welcomed. I don't think there is any help specifically for Husband anywhere, but there should be. They do seem to expect us to die at any second.

I have been a Lupus patient for about 25 years and I am still here!
x Lola
 
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