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Discussion Starter #1
Went to see a rhuemy privatley 2 weeks ago, got his letter this am. He says I definatley have badly managed fibro, plus possibly palindromic arthritis and sjogrens's. He wants to see me on a bad flare up and probably put me on a 3 -4 month trial of Hydroxychloroquine
 

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Hi there,

I have just read your last post in the other thread about the chest pains... sorry I didn't reply, it kind of left me speechless!!! Honestly - you should get out more :mad: wouldn't we all love to if we could :wall:

I hope that this new rheumy will be a whole new beginning. It sounds like he is at least taking you seriously. Is there any way you can then go onto public care and still be followed up by him? I have no idea how it works over there.

I hope he doesn't intend to sit around and wait for you to flare really badly before doing that trial. Plaquenil can take so long to work that it would be good to give it a go as soon as possible.

So many questions and so few answers, you must be so frustrated.
:hug:

Katharine
 

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Discussion Starter #3
Thanks

I am frustrated with the hospital but relieved with rhuemy findings, at least i can start to concentrate on managing my condtions, he has already referred mw back to NHS care so I dont have to apy for treatment, on investigation in internet have found chest pain very common with fibromyalgia so hopefully he can sort that as well!!!
 

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Yep, that is indeed a relief.

Hopsitals on the whole, emergency especially, are pretty scary at times. We have a very good health sysytem here but even so when I went into the local hospital with breathing problems they implied that I was just being hysterical - now anyone less hysterical than me and they're comatose so that irked me somewhat. Anyway, I have learnt my lesson and hope that by going to my rheumy's hospital (where my notes are on the PC) I'll be taken more seriously.

Anyway, I'll keep fingers crossed that this is a true new beginning for you treatment and health wise!!! :)

Katharine
 

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Discussion Starter #5
rheumy visit

Been to see my new rhemy today as he gave me an 'open appointment' so he could see me during major flare up. Got to see his registrar, said I definatley had fibromyalgia (I knew that) could 'feel' anything during my examination, I could I was in tears with the pain!!! Upshot is going to get my Gp to prescribe tramadol for my bad days, (I already take co-codamol30/500mg 2 x 4 a day, Ibuprofen retard 800mg x 2 nightly, Omeprazole 20mg daily) now been perscibed from previous consultation Dosulepin 25mg x 1 nightly, I'm gonna rattle when I walk. I am to see how I go for 2 months, if my flare ups don't calm down I'm gonna be put on Hydroxychloroquine, I'm to go back in 6 months if none of that is working they will refer me to pain clinic and physio! Don't know if I happy or not with visit, yet more drugs and more wait and see!!!!

Rattle, Rattle

Jo:worried:
 

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Dear Jo, It can take a little juggling to get the right mix of tablets. Many of us take an awful lot of them. Glad you have been referred back to NHS care,
I do wish he had started you on Plaquenil!
x Lola
 

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new meds started

Gp rang to say he had recieved letter from rhuemy and has starterd me on 2 x 200mg plenquil, said it would take about 2 months to work, fingers crossed!

Jo :)
 

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That IS good news Jo!!

I'm glad that they are trying plaquenil. Just one thing, it can take longer than two months to work. Often between 3-6, sometimes even longer so I would really fight that if they want to take you off it too early.

Good luck,
:hug:
Katharine
 

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Hello Jo
This is all good news, as far as it goes. That certainly is a short time to see if Plaquenil will help and I am wondering what has he proposed about the poorly managed fibro and did he test you for it ?

I hope the Plaquenil will bring some relief. :)

Bye for now
Clare
 
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