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19 Posts
Hi,
I have been on and off this site for about 4 years. I will tell you a little bit about whats been going on. I have been seeing Dr's and still no definitive diagnosis of Lupus. I do have Fibromyalgia and Osteoarthritis in my knee. I had a flare of some sort about 4 years ago after my Grandmother died which included flu type symptoms with joint and muscle pain, dizziness, headaches, low grade fevers and a constant facial flushing. Was real sick for about 7 months then got better and have been better since then until about 3 weeks ago. I started with the burning leg muscle pain of both legs where I could not even walk for 3 days, joint pain, low grade fevers and just feeling like crap. I was also getting the facial flushing where I thought my head was a tea kettle. I also get bright red palms during these episodes. (Again had a death in the family 4 days before christmas which I have been totally a wreck over.- It was my former husband who died and my 2 boys were devestated cause it was their dad). Lots of stress since Christmas.
The new symptom i noticed was a blister type rash on my left thumb. It was weird and it hurt. It started under the skin as white blisters then they popped under the skin leaving red spots and the spots eventually open to a dry red lesion. My skin on my thumb is tight and the pigmentation is different and my skin looks shiny. There are new blisters forming every day. My skin then turns very dry and peels, just on my thumb so far. Does anyone have a clue as to what this can be? Can it be a lupus skin thing starting? I have never had this before. Does it normally take years for lupus to be diagnosed? The only thing so far that is positive is the ANA. Everything else has been normal.
I am waiting for a series of blood and urine results to come back. Last friday I went to the lab and had every test in the book. They took 10 tubes of blood from me and I had to do 3 -24 hour urine samples to test for all this stuff. Hopefully I will finally get an answer as to why I feel like this. I didnt have the skin thing when I saw my Rheumy or primary Dr last week. I dont know whether to see a dermy for a posible biopsy.
Well thanks for listening. My Primary Dr said that we will get to the bottom of this. I hope so. I felt good for so long then again hit me like a tone of bricks and came on suddenly. Why does this disease have to be so complicated???
Thanks again ,
Kim:sad:
I have been on and off this site for about 4 years. I will tell you a little bit about whats been going on. I have been seeing Dr's and still no definitive diagnosis of Lupus. I do have Fibromyalgia and Osteoarthritis in my knee. I had a flare of some sort about 4 years ago after my Grandmother died which included flu type symptoms with joint and muscle pain, dizziness, headaches, low grade fevers and a constant facial flushing. Was real sick for about 7 months then got better and have been better since then until about 3 weeks ago. I started with the burning leg muscle pain of both legs where I could not even walk for 3 days, joint pain, low grade fevers and just feeling like crap. I was also getting the facial flushing where I thought my head was a tea kettle. I also get bright red palms during these episodes. (Again had a death in the family 4 days before christmas which I have been totally a wreck over.- It was my former husband who died and my 2 boys were devestated cause it was their dad). Lots of stress since Christmas.
The new symptom i noticed was a blister type rash on my left thumb. It was weird and it hurt. It started under the skin as white blisters then they popped under the skin leaving red spots and the spots eventually open to a dry red lesion. My skin on my thumb is tight and the pigmentation is different and my skin looks shiny. There are new blisters forming every day. My skin then turns very dry and peels, just on my thumb so far. Does anyone have a clue as to what this can be? Can it be a lupus skin thing starting? I have never had this before. Does it normally take years for lupus to be diagnosed? The only thing so far that is positive is the ANA. Everything else has been normal.
I am waiting for a series of blood and urine results to come back. Last friday I went to the lab and had every test in the book. They took 10 tubes of blood from me and I had to do 3 -24 hour urine samples to test for all this stuff. Hopefully I will finally get an answer as to why I feel like this. I didnt have the skin thing when I saw my Rheumy or primary Dr last week. I dont know whether to see a dermy for a posible biopsy.
Well thanks for listening. My Primary Dr said that we will get to the bottom of this. I hope so. I felt good for so long then again hit me like a tone of bricks and came on suddenly. Why does this disease have to be so complicated???
Thanks again ,
Kim:sad: