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Discussion Starter · #1 ·
Hello Everyone hope you're all having a good day!:)

Thankyou for your replies to my previous thread on my shakey hand. I'm here once again to ask for your advice!

A couple of days ago the weather was glorious and foolishly I spent time in the garden with my little family. Yes I wanted to be part of things and not stuck indoors or under the parasole ( what a mistake! ). Hubby told me not to spend too much time in the sun as I've talked to him about your experiences and although no diagnosis yet he told me to be careful. I thought I knew best or maybe I just wanted to rebel and please myself seen's though the Docs aren't saying anything and I just wanted to be my old self. Such a mistake!!!!!!:(

My fingers have got much worse and really painful along with my left eye feeling strange although not swollen. It just feels tight in the outer corner. Feet began to get sore and itchy with little bumps on them. Also yesterday my right ear is extremely sore just on the inside and feels really rough or bumpy!. I have had this a couple of times before but not mentioned to anyone.I'm wondering if this could be a symptom of whatever I have and should it be mentioned to the Rheumy next week? My sinuses are playing up again as well which is no suprise as I've suffered years with them and the pain that it brings in my face.

I've also got up this morning and on my chest ( bikini area ) I have alot of little red spots under the skin. Yes I know I was very silly to go out in the heat and I have told myself off! I've definitely learnt my lesson the hard way:hehe:

Before I go just want your thoughts on how I was feeling yesterday! I've read several posts about having low days and just wondered if that's what was happening to me. Yesterday I felt so low and could'nt explain to hubby why? I was getting really angry with noises I could hear from outdoors( cars beeping, house alarms etc...) Also nipped to see parents and I came away feeling stressed with all the voices and how busy it was with some other relatives there. I tried explaining to hubby but as usual started getting mixed up with words and just ended up crying!!! I'm not a teary person or at least I never used to be.

I intended to keep this short but seemed to have gone a bit too much:lol:

Just trying to make sense of things!!!

Mrs M x

Forgot to mention but I also ended up with sores all down one side of my tounge. Anybody else have the same?

xxx
 

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Hi there,

The sun and heat in general can make you feel generally worse in yourself and provoke a heavy sort of fatigue which can definitely make you feel thoroughly miserable.

Anything that is happening should be noted and mentioned to your rheumy. it may have a significance for him that you wouldn't imagine.

If anything is "visible" (rash, swollen joints etc.), you should take photos to show the theumy as well.

Katharine
 

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Hi Mrs. M!

I also get sores on the sides and bottom of my tongue. Mine look as though the skin has been peeled off, leaving a red area that usually doesn't hurt. Of course, contact with my teeth and hot liquids do irritate the sores.

If you can, snap a picture of the sores on your tongue, too. It's a bit awkward to do, but you can pull your tongue forward and to the side using a wash cloth to grip.

I understand the desire to be your old self since you haven't been diagnosed yet. I went through that stage, too. Why should I let some nebulous "maybe" affect my daily routines and pleasures??? I think it is a natural reaction for most people to go through a period of denial. Like you, I learned the hard way that my disease doesn't care what I think in the slightest!

Hope you feel better quickly!

Terri
 

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Hi Mrs.M, Well, you did it didn't you? you broke one of the golden rules.
1. the sun is your enemy
2. stress=pain
Yes, being out in the sun yesterday was wrong , even though I understand why you did it. If you had covered up and worn a hat, sun screen, etc. the results would just have been less. If you want to go out, cover-up and do all the prep., and only stay out for about 15 minutes. About that mood that it left you in, and the crying, I had gotten to the stage where I was crying at the toilet paper commercials on t.v. I finally gave in and got an antidepressant. How often do you end up in these moods.
If it is only once in a while, then that is different.
Get yourself better, rest, and smile, oh, and stay in touch.
:wink2::rolleyes:
 

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Discussion Starter · #5 ·
Hi Guys thanks for your replies:)

I'm feeling a little better. Yes I should have covered up etc.. but believe me I've learnt my lesson! Although in my defence I did put factor 30 on which is pretty good for me considering I used to use factor 10!!!!!!!!!!! Or well at least I won't do it again it was just that feeling that Docs aren't saying anything so maybe I am alright. Guess I was wrong.:(

I'm definitely going to listen to my body and yes with or without a diagnosis I need to adjust.

Mrs M x

PS Halfpint just to say the 'funny moods' are not that often but when they come on I maybe get more stressed because I don't understand why I'm feeling that way. Maybe I need to take things easy and not get so down when new things are happening. I was the type of person that wanted to know what was happening and loved routines and had a general idea of how my days would pan out. Now it seems that I just need to take each day at a time and expect the unexpected.
Hope I'm making sense!!!!!
 

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Hi Mrs. M, I was, and still am sorta, just like you. Not
quite overly compulsive, but I was the one that had my whole week planned out. I knew what I was going to do in the morning , afternoon, and nite for my whole week, and
every meal I was going to make for which day. Well, needless to say, that does NOT work now!!!! I will go to
bed tonight and say to myself that tomorrow I will do a
small load of wash and make a meatloaf for dinner. It becomes fiction. I will get up in the morning, I will have a huge headache, feel as limp as a dishrag, and will accomplish nothing. And that upsets me an my mood just goes down to the floor. I feel worthless, to say the least.
So, I have changed my life (almost halfway ) and I have learned to just take every day as it comes, and don't make any deffinate plans.It is hard to do for an"organized" person like us, but thats our choice. I hope that I did not offend you when I answered your post. Be well and smile
and keep posting.:wink2::rolleyes:
 

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Discussion Starter · #7 ·
Hi Halfpint

You definitely didn't offend:)
I really appreciate everyone that replies to my threads because without you guys I'd be completely lost!

I hope that tomorrow Halfpint you do indeed get to make your meatloaf for dinner as that sounds yummy but forget the washing I'm sure it can wait another day. Hope you are well and have a great day tomorrow;)

Love Mrs M x
 
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