Hi, I'm Jenn -
Medical guinea pig - newly diagnosed with Tumid Lupus Panniculitis and I forget the last word, which is the "E" also in the SLE & (potential MCTD) . I'm in a pms driven flare at the moment - ankles are aching - shoulders, elbows, both arm & shoulder and back muscles. I fell on Monday because my legs just stopped while I was walking... I'm very confused... I just started plaquinil & stopped prednisone - I feel worse than I've ever felt. Yesterday was awful, today a bit better - but not much. It feels like someone is hammering a nail into my elbow and I am just achy everywhere - I will be calling my doctor when I get home (at work like this) -- advil doesn't cut it for the pain - any other suggestions? Any/all advice welcome - I'm still new with this and on the verge of tears from the pain at the moment.
Medical guinea pig - newly diagnosed with Tumid Lupus Panniculitis and I forget the last word, which is the "E" also in the SLE & (potential MCTD) . I'm in a pms driven flare at the moment - ankles are aching - shoulders, elbows, both arm & shoulder and back muscles. I fell on Monday because my legs just stopped while I was walking... I'm very confused... I just started plaquinil & stopped prednisone - I feel worse than I've ever felt. Yesterday was awful, today a bit better - but not much. It feels like someone is hammering a nail into my elbow and I am just achy everywhere - I will be calling my doctor when I get home (at work like this) -- advil doesn't cut it for the pain - any other suggestions? Any/all advice welcome - I'm still new with this and on the verge of tears from the pain at the moment.