Hi Everyone,
My name is Jen. I am almost 30, married for 7 years with 1 child. I am living in NZ but use a lot of UK resources as they are very familiar medical wise with NZ health. I am still currently undergoing diagnosis because I am ANA- but my rheum is 90% certain I have Lupus.
I think it's something that has affected me since I was 20 as I am a recurrent miscarrier (7 miscarriages, 8 lost angels) who has had 'flares' after each miscarriage. I was told time after time it was just a virus, or even someone suggesting a virus forced a miscarriage, but last year I lost twin girls and had 3 back to back D&Cs. 2 days after my last D&C I felt really 'off'. That night I saw a huge white light and felt my body shake. After that I was hit with the largest flare my GP has seen. I was put into hospital on oxygen with my liver failing.
My GP suggested 2 days later that I had Lupus and I finally saw a rheum 14 weeks later. He said I had a mixed connective tissue disease, then said it might be Still's, and now has come back to Lupus.
It is such a horrible disease! I am often struck down with very bad pleurisy and have been on steroids for almost 14 months now. I seem to go up to 20mg, work my way down to 5 for a week then back up to 20mg. The weaning process is very hard on my body.
I cannot stomach plaquinel, MTX made me too sun sensitive (got 2nd degree burns across my chest despite wearing a long sleeve shirt!) and I am allergic to AZA.
My GP (trained in London) suggested this website as he has had many patients from the uk on this site.
I have 1 gorgeous almost 3 year old girl Sophie and we would love (are we crazy?!) to have more children.
The best part of finally knowing is we have a reason to the miscarriages. It has been a heart-breaking ride and at last we finally know.
The worst part has been the physical pain and pleurisy.
I look forward to learning and meeting you all.
My name is Jen. I am almost 30, married for 7 years with 1 child. I am living in NZ but use a lot of UK resources as they are very familiar medical wise with NZ health. I am still currently undergoing diagnosis because I am ANA- but my rheum is 90% certain I have Lupus.
I think it's something that has affected me since I was 20 as I am a recurrent miscarrier (7 miscarriages, 8 lost angels) who has had 'flares' after each miscarriage. I was told time after time it was just a virus, or even someone suggesting a virus forced a miscarriage, but last year I lost twin girls and had 3 back to back D&Cs. 2 days after my last D&C I felt really 'off'. That night I saw a huge white light and felt my body shake. After that I was hit with the largest flare my GP has seen. I was put into hospital on oxygen with my liver failing.
My GP suggested 2 days later that I had Lupus and I finally saw a rheum 14 weeks later. He said I had a mixed connective tissue disease, then said it might be Still's, and now has come back to Lupus.
It is such a horrible disease! I am often struck down with very bad pleurisy and have been on steroids for almost 14 months now. I seem to go up to 20mg, work my way down to 5 for a week then back up to 20mg. The weaning process is very hard on my body.
I cannot stomach plaquinel, MTX made me too sun sensitive (got 2nd degree burns across my chest despite wearing a long sleeve shirt!) and I am allergic to AZA.
My GP (trained in London) suggested this website as he has had many patients from the uk on this site.
I have 1 gorgeous almost 3 year old girl Sophie and we would love (are we crazy?!) to have more children.
The best part of finally knowing is we have a reason to the miscarriages. It has been a heart-breaking ride and at last we finally know.
The worst part has been the physical pain and pleurisy.
I look forward to learning and meeting you all.