Hi everyone I'm new, and not really sure what to do, but here goes.
I've been having strange symptoms since my daughter was born 8 years ago, but never saw a doctor until 18months ago when I lost the sight in my left eye...it didn't go for long thankfully. Then it was the servere headaches and I kept falling over, oh and found thinking difficult and speaking. High BP, now on tablets for. At first my GP said it's migraine, then when it happened again a few months later and it lasted for longer he referred me to Neuro, he said he was concerned about MS. Anyway, Neuro wasn't very nice and made me feel like it was all in my head. Had VEP & Brain MRI. There was 2 lesions on the brain (inconculsive) and VEP was normal. ESR was raised and GGT abnormal. My GP was unhappy and wanted me to have a second opinion, this one thought fibromylgia. In may I started with the swollen painful joints, struggling to walk extra and flu-like symptoms, the fatigue was terrible and everything has stayed with me. Oh I get freezing cold feet that look grey and I burn really hot on parts of my body, face flushed and other parts freezing. GP tested for RF and it was slightly positive, so off to the Rheumy was the next stage.
Saw Rheumy in Dec and he was pretty sure RA on examination and then sent me for tests. Then a week ago I was in terrible pain with chest and ribs, made worse by breathing. GP sent me to hospital as concerned about a blood clot. GP said your Rheumy is thinking that you may have Lupus even though the test was negative, I was like shocked, that was the first time I had heard of Lupus. Thankfully at the hospital they ruled out a blood clot and said it's inflammation of the chest walls.
I don't get a rash on my face and I'm not sun sensitive, so surely I can't have Lupus can I? I do get a rash on my hands and forearms, sometimes on my chest, but it never lasts long. I do suffer alot with dry eyes, mouth i guess is dry alot, I have a metallic taste in it most of the time.
Can you be diagnosed with Lupus even with negative tests? Sorry to go on, it's just GP was convinced MS would be diagnosed one day, then I got used to the fact of RA.
Thanks for reading