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Hi all,

My name is Amanda, I am a SAHM of 4, married happily now 13 years and have been suffering from all types of werid symptoms for over 8 years.
Diagnosed with Fibro, but have been thought to have Lupus now several times over the course of the years... I lurk here reading all your posts and concerns about your health and find it extremely imformative.

I hope that maybe someday I will find out if i have Lupus, right now it is still a waiting game...... ping ponging back and forth to Dr.s....Some days I think I may be going crazy ......
 

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Hello Mandiee and welcome :)

I hope you enjoy being here with us and continue to find the site informative.

For many of us the diagnosis journey was a long one. Auto-immune diseases are complex with no true way of easily diagnosing them and, on top of that, not many doctors actually specialise in them.

bye for now,
Katharine
 

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Welcome to the site and I hope you get some firm answers soon as to whether lupus is likely contributing to your health decline the last 8 years.
My best advice is to learn as much as you can about lupus, obtain copies of bloodwork and test results, and be very proactive in standing up for yourself and not ever giving up in trying to find answers and more importantly - solutions!

Let us know if you have any specific questions about lupus and your symptoms. Has treatment for fibro helped you at all? I hope they've given you some treatment for that, it can be just as bad if not worse then lupus in terms of how it makes you feel. At least, that's what many members here have reported that have both.

Take care, and keep in touch with your progress.
 

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Hello Mandy,

A big :welcome: to you...

I hope you enjoy coming on the site as their is so much information to learn from and support group from heaven... Eveyone is so kind and helpul on this site... It makes living with something this awful easier; with all the understanding and kindness you receive... welcome again.

Love Penny
 

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Hello Mandy,
I have Fibro as well as Lupus. They quite often go together.
It must be hard for you to mange with the family.
My children are older now, luckily I didn't totally fall apart until my youngest was about 9.

Stay with us.
x Lola
 

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Hiya Mandy...

I have been ping ponging too so your not alone.

I went from You have Chronic Fatigue Syndrome to Fibro to Multiple Sclerosis and now we think you dont have MS but probably Lupus or MCTD.

Ummmmm, WHATEVER.:lol::lol::lol:

It is frustrating but keep pushing forward and eventually answers will come.

And I was just dx with Lyme disease................why not.:rotfl:
 

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Hi Amanda, :wavey:

Welcome to the site. As you can see it's a pretty friendly place with a wealth of information. I was diagnosed with Lupus 2 years ago and it was the help and advice I received here that helped me push for my diagnosis.

Whether or not it is Lupus you have the information here should point you in the right direction for the tests etc you need to find the answers you deserve.

Hugz, :hug:

Pam xxx
 

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Hello Amanda;)

You are definitely not going crazy and if so I'm right there with you:rotfl:
I had Fibro said by Rheumy a couple of weeks ago and he gave me amtriptyline( hope I got that right) but doesn't seem to have kicked in yet!
I'm also still going through various tests for lupus which like you say is a waiting game:(

Hope yoy're well at the moment and welcome to the site. Everyone is just FAB here.

Mrs M
 
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