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Hello my name is Denise and I am a mother of two teenagers, wife of 20 years and beside my self at this point.
Over the last 5 years my ANA has been coming back with lupis. My ex family doctor as of three months ago kept saying if its true lupus then the lab will automatically run a second test. Don't worry its nothing. Well over the last 8 months my helath has taken a serious turn. I am in sooooooooo much pain I may get one day out of a week. I am so weak and tired, My balance is gone on bad days I have to focus to make sure when I am walking that my legs come with me and I don't fall. I have had mysterious fevers that come and go, when at work I have to physically hold my head up at times. the exhaustion hits fast and hard and some days I may only have an hour of energy. Migraines are a constant part of my life. I have had the rashes and sever reactions to the sun and I used to spend the whole summer outside, now if I am out for two hours I get weak and I get sun stroke very easy enven on the breezy days. I have had trouble with my memory over the months which is totally frustrating. I have had IBS since I was a child and even hospitalized for it the pains in my stomach days I don't know if its the ibs for something else. I have battled problems with my kidneys such as stones and infections and other joyous things. My joints I am really to give away especially my neck , hands and now my knee which is crippling me.
Over the last couple of years I have suffered a mini stroke which took my speech and cognative thinking for three weeks. Man when I looked at the lupus list I think I had it all except for maybe two of the things.
I now have a new family doc who looked at me three months ago and kept wondering why my blood tests were out of whack. On the thrid time of him wanting to send me again I said let me guess lupus. He was amazed I knew. I then told him what my family doc was saying and he was floored. He immediatly put me on predisone and something for my stomach it was the est week I had. Plus he then informed me I was in a major flare and that it was not acceptable that I had been left so long. I would just like to here from others who know what the daily battle is and if things get better.
Denise
Over the last 5 years my ANA has been coming back with lupis. My ex family doctor as of three months ago kept saying if its true lupus then the lab will automatically run a second test. Don't worry its nothing. Well over the last 8 months my helath has taken a serious turn. I am in sooooooooo much pain I may get one day out of a week. I am so weak and tired, My balance is gone on bad days I have to focus to make sure when I am walking that my legs come with me and I don't fall. I have had mysterious fevers that come and go, when at work I have to physically hold my head up at times. the exhaustion hits fast and hard and some days I may only have an hour of energy. Migraines are a constant part of my life. I have had the rashes and sever reactions to the sun and I used to spend the whole summer outside, now if I am out for two hours I get weak and I get sun stroke very easy enven on the breezy days. I have had trouble with my memory over the months which is totally frustrating. I have had IBS since I was a child and even hospitalized for it the pains in my stomach days I don't know if its the ibs for something else. I have battled problems with my kidneys such as stones and infections and other joyous things. My joints I am really to give away especially my neck , hands and now my knee which is crippling me.
Over the last couple of years I have suffered a mini stroke which took my speech and cognative thinking for three weeks. Man when I looked at the lupus list I think I had it all except for maybe two of the things.
I now have a new family doc who looked at me three months ago and kept wondering why my blood tests were out of whack. On the thrid time of him wanting to send me again I said let me guess lupus. He was amazed I knew. I then told him what my family doc was saying and he was floored. He immediatly put me on predisone and something for my stomach it was the est week I had. Plus he then informed me I was in a major flare and that it was not acceptable that I had been left so long. I would just like to here from others who know what the daily battle is and if things get better.
Denise