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· Inky
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248 Posts
Welcome to the group Isa
I am from the UK so cannot help with local contacts. Have you looked on the Lupus Foundation of America (LFA) website it is very good.

http://www.lupus.org/newsite/index.html

You will get a lot of help and support on this list, to help you adjust to this weird illness.

Family take a long time to adjust sometimes, so maybe print some info off from the LFA website for them. I find giving people leaflets helps them both to understand and to take it seriously.

Welcome again to the list
Love Sara
x
 
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