Welcome to the group Isa
I am from the UK so cannot help with local contacts. Have you looked on the Lupus Foundation of America (LFA) website it is very good.
http://www.lupus.org/newsite/index.html
You will get a lot of help and support on this list, to help you adjust to this weird illness.
Family take a long time to adjust sometimes, so maybe print some info off from the LFA website for them. I find giving people leaflets helps them both to understand and to take it seriously.
Welcome again to the list
Love Sara
x
I am from the UK so cannot help with local contacts. Have you looked on the Lupus Foundation of America (LFA) website it is very good.
http://www.lupus.org/newsite/index.html
You will get a lot of help and support on this list, to help you adjust to this weird illness.
Family take a long time to adjust sometimes, so maybe print some info off from the LFA website for them. I find giving people leaflets helps them both to understand and to take it seriously.
Welcome again to the list
Love Sara
x
