Hi,
Some background on me: I am recently 40, have had migraines since childhood, suffered 4 miscarriages and a stillbirth (was put on prednisone - clue?) and had two full term children afterwards. In 2005 I had a period of six months where I had transient High fevers followed by joint swelling, lesions on my hands, feet and in my mouth, extreme fatigue and muscle pain - lab tests high were sed rate and C-reactive proteins, I was placed on High doses of prednisone and eventually tapered off. No one figured out what was going on then - kept telling me a viral syndrome. Last summer I developed out of the blue 5 pulmonary embolisms was treated etc...recently (I am a RN) I have had worsening headaches (more frequent, more severe), ringing in my ears, fatigue, transient joint swelling this time in my hands and feet, and cognitive issues. My PCP sent me to a neurologist two weeks ago and since my labs also come to my office where I work - I found out my Lupus Anticoagulants today were greater than 200. I was really thinking I may have MS so this has thrown me for a loop although having had several rounds with prednisone with great success - the neurologist said "very interesting" when we went through my history with the miscarraiges and the prednisone working. I still have other tests to do before I go back to the Neuro including a MRI, an EEG, and an EMG so none of this is for sure I suppose but has anyone out there backed into a Lupus diagnosis and was what I went through in 2005 perhaps a "flare". I am feel like a complete idiot being a nurse and all - but they say we are the worst patients. Looking forward to some replies. Kimberly
Some background on me: I am recently 40, have had migraines since childhood, suffered 4 miscarriages and a stillbirth (was put on prednisone - clue?) and had two full term children afterwards. In 2005 I had a period of six months where I had transient High fevers followed by joint swelling, lesions on my hands, feet and in my mouth, extreme fatigue and muscle pain - lab tests high were sed rate and C-reactive proteins, I was placed on High doses of prednisone and eventually tapered off. No one figured out what was going on then - kept telling me a viral syndrome. Last summer I developed out of the blue 5 pulmonary embolisms was treated etc...recently (I am a RN) I have had worsening headaches (more frequent, more severe), ringing in my ears, fatigue, transient joint swelling this time in my hands and feet, and cognitive issues. My PCP sent me to a neurologist two weeks ago and since my labs also come to my office where I work - I found out my Lupus Anticoagulants today were greater than 200. I was really thinking I may have MS so this has thrown me for a loop although having had several rounds with prednisone with great success - the neurologist said "very interesting" when we went through my history with the miscarraiges and the prednisone working. I still have other tests to do before I go back to the Neuro including a MRI, an EEG, and an EMG so none of this is for sure I suppose but has anyone out there backed into a Lupus diagnosis and was what I went through in 2005 perhaps a "flare". I am feel like a complete idiot being a nurse and all - but they say we are the worst patients. Looking forward to some replies. Kimberly