HI fellow suffers
I am not diagnosed with lupus but sjogrens, fibro and raynaulds. I am beginning to think I might have lupus. I am typing left handed because i have tendonitis in my hand. I was finally diagnosed after coughing 2 years all night. I had hair loss and fatigue. I did a real doctor run around until one doctor sent me to a rhem. My brother has a Phd in immunlogy. He told me to go to a teaching hospital. It was so far I put it off. I just moved back to CA and assumed since I would not need to go to a teaching hosp since I was diagnosed. WRONG I decided to go to an internist for primary WRONG I have had pain on and off in my hands for the year and a half since we moved here. Fatigue was terrible. We moved in two weeks and it killed me. With the housing situation here (prices tanking) we rented so we had to move again: they wanted to sell. We also have had several problems with small and large things.
I recently started going to Scripps and FINALLY found out the hand painis tendonitis. Doctors thought it was all stress and depression and told me to see phsyc. I was given prednisone again and felt much better. Then, I was mad at the docs. Also problem with yeast infection cream that doctor ignored. That is when I left him and went to Scripps. Just had my sleep study and dont know for sure but think I have apena. I am so happy to find out what the hand pain is. One counselor said fibro is all in your head! This made my family think it was! That has been my worst problem. My husand told me to complain about the pain more because my older daughter got mad I wouldn't drive to her house an hour away to babysit. She said I didnt have enough pain to have what I do. So I complained and now everyone says I am a complainer. Even when I was depressed first doctor said you dont have cancer! So it doesnt help either way. I feel bad for my husband since he works really hard and gis finishing his Phd so cant help much. Also infections get in the way of our intamacy. Anyone else have that problem? He is in great shape and hates me being in so many meds. Oh, stomach problems, reflux, gastritus, stricture,and previous ulcer are preventing me from taking good pain meds or celebrex.
Prednisone really helped me with my outlook! I also take lexapro. BOTTOM LINE GO TO A PLACE THAT DOES RESEARCH!
