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Hello Colleen and :welcome:

Please just let me reassure you, you haven't offended anyone :hug: We all have our down moments and are familiar with the disappointments and frustration this disease can throw at us.

Some people who have an original diagnosis of skin lupus do go on to have SLE. I'm not sure what the percentage is but it is definitely not unheard of.

Do you see a rheumatologist currently or is your primary doc a dermatologist? It would be worthwhile getting a referral to a rheumy if that hasn't been done already to ensure correct treatment and follow up.

I know that things seem very bleak now but they will look up and we'll happily help as much as we can.


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