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Hello there and welcome,

The lupus anti-coagulant test is, in fact, badly named as it is not a test for lupus at all but for something called APS or Hughe's syndrome which is a blood clotting disorder. That is a condition which can exist on it's own or alongside other auto-immune diseases such as lupus (about 30% of lupus patients also have APS). Even having the positive test doesn't necessarily mean that your daughter has APS as for an official diagnosis she must also have a "clotting incident".

For most people APS is easily treated and not a major problem at all. Many people simply take one baby aspirin (between 75 and 100mg) a day.

As your daughter is already taking plaquenil and azathioprine she is obviously being treated as would a lupus or MCTD patient even without positive bloods. She is obviously being well followed up and that's how they have picked up the positive lupus anti-coagulant test.

It is very important to treat the internet with caution. Even reading here on the boards can be quite frightening but it is very important to know that most of the people who write here are either "newly diagnosed" "not yet diagnosed" or the rarer, more severely affected people. The boards are not necessarily representative of the "lupus" population as a whole.

I hope that helps a little, don't hesitate to ask any questions you may have there are loads of knowledgeable people here willing to help.

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