[cindyann]

Hi all,
I have suffered from SLE/Sjogrens for quite a few years, recently having vasulitis, and seizures due to cns lupus. Although I have suffered the general aches and pains of lupus, within the last few weeks I have also suffered the terrible debilitating pain, that has been described. My GP is good at given analgesia, but I wonder if anyone has suggestions for the best pain relief?

thanks

 

[LolaLola]

Hello Cindy,
Dihydrocodeine can be good as they come in 30 mgms or a long acting 60 mgms and you can combine the two which makes them flexible. You can also enhance their effect by using paracetamol with them if your Doc. agrees . I find that keeping "topped up" is much better than waiting for the pain to start and then chasing it.
x Lola

 

[Joandublin]

Hi Cindyann

Im sorry to hear you are in so much pain. If things are really bad for me I use a combination of Zydol (Tramadol)and Solpadol (same as Tylex). The Zydol is a slow release tablet used for moderate to severe pain and the Solpadol is used for severe pain. The combination of both certainly helps tremendously with the pain, even if it doesnt take it all away.

I hope you find something that works for you

Take good care
Joan:rose:

 

[Bullwinkle]

Sorry that your pains are becoming a bit much. They can sure zap all your energy and any joy of life.
I use Percocet when I get really overcome with them. I have to give up on any activities for the duration as I get quite light-headed , but it sure helps.
All the best Cindyann.

 

[onetay]

Hi cindyann,
I sleep with a pillow between my legs to ease the hip and knee pain it does help most of the time. I also have a body pillow to put against my back when I am on my side. I have also replaced my regular shower head with a messaging one and often get in a real hot shower and just let the heat and water relax my body before bed. It is also important to just have an hour to rest(even if you don't sleep) just laying down can help with some pain. I am no doctor so this is just what sometimes works for me you can give it a try hope at least one of these help for you.
Tammy