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Hello theoptimist and :welcome:
You're in just the right place for support and friendship. Do you have Lupus or another condition or are you in the process of investigation or diagnosis? I hope you enjoy being part of our community, it's good to have another new member.
Best wishes,
 

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Discussion Starter · #3 ·
:flower:
:flower:Hi Jessica ,
Thank you for ya message :)
I was diagnosed with SLE last decemeber and then 2months ago its been upgraded to BSLE (bullous lupus aka the skin blistering disorder)
From what I have been told by my doctors it is a rare form .. so lucky me huh lol
I glad to be a part of this forum

Love
The optimist
 

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Hi optimist and welcome to the forum.

It seems we tend to add different diagnoses when diagnosed with lupus.
You have found a great site, members here are the best.
Take care,
Lyn
 

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Discussion Starter · #5 ·
Hi optimist and welcome to the forum.

It seems we tend to add different diagnoses when diagnosed with lupus.
You have found a great site, members here are the best.
Take care,
Lyn

Thank you for your message
And yes you are correct .. Lupus is so complex .. it's always something different for each person .. I'm hoping to learn more on this as I go on
 

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My twin sister also has Lupus, which I was told wasn't that common (although there are other people here with siblings also diagnosed). Dare to be different, I say!
 

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Discussion Starter · #7 ·
My twin sister also has Lupus, which I was told wasn't that common (although there are other people here with siblings also diagnosed). Dare to be different, I say!
Lol Jessica I know where you are coming from .. my younger sis is only 21 .. we have 9yrs difference between us . Sissy was diagnosed over a year ago with Lupus organ involved . And at that time I was diagnosed with ITP (low platelet disorder) and over time my sister is still with Lupus and last September my symptoms started with joint pains etc after a week holiday in Fiji . Anyways by January this year I was upgraded to the BSLE (blistering) as my Lupus has not affected any of my inner organs just my skin .. and yes Lupus is so complex nothing surprises me any more . Every time something new happens I just ask my doc can you manage it .. as long as the answer is YES I'm
All for it
 
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