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Discussion Starter · #1 ·
Hello. I was diagnosed in April with UCTD strongly leaning towards lupus. I have just about every symptom of lupus, the rashes, debilitating fatigue, nausea, rapid weight loss (22 lbs in less than 2 months) , gallbladder pain, joint pain, brain fog, hair falling out, positive ANA, positive rheumatoid factor, vitamin d deficiency etc. and I am on Plaquanil and recently did a Prednisone Taper to get me out of a flare that landed me in bed for a week.

My question is regarding catching colds, and flu's. I have been reading a lot lately and notice that people with Lupus seem to be more suseptable to viruses, but I didn't catch 1 virus in the last year and I have 2 young children that are always catching colds and whatnot from school. I normally get sick at least once during the winter months, and was even hospitalized for a flu that the whole family caught, but hit me much worse, but last winter I was healthy as a horse other than the then undiagnosed autoimmune issues.

Is it normal to have a strong immune system in the beginning stages of UCTD & lupus?
 

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Hi, and welcome to the site. Wow!!!! Not one cold or virus, that must be so nice. I would enjoy it while it lasts. I can't answer on whether it is normal or not as we are all different. I hope things continue well for you.

Deb
 

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Hey Goony... I don't get sick either... haven't had a cold in I don't know how long... granted... I do get the flu shot every year... but my whole household can be sick but I just don't get sick either... remember,,, our bodies are fighting off the bad as well as the good (over active immune system) so that is why I figured I wasn't getting sick... mind you I do sometimes feel like I am going to get sick... flu like symptoms, like every other day.. but it never actually ever happens.. you may be one of the lucky ones like me and never get a cold...

hope that helps.
 

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Hello Goony,

I think that everyone is different. Our immune systems are kind of "faulty" and that can mean over-active in some areas and for some people under-active in others. A lot of people with lupus do seem to be more susceptible to certain types of infection but it's not a hard and fast rule.

From about the age of twelve to 28 I had very regular colds and infections. In fact from the age of 18 to 28 I had bronchitis that was bordering on pneumonia at least twice a year. I spent 5 months of my last pregnancy (in 1999/2000) on very strong antibiotics just to keep me breathing. Since then not even the slightest wee sniffle - absolutely nothing!! And that despite four children and a husband who all come down with things which I sail through. The only exception to this was UTI infections which I continued to get relatively frequently when ill (they stopped when I started treatment) and once when I first went on prednisolone (body adjusting to it).

I haven't had the flu since 1990 and unlike specialk I have never had the flu shot!!!

I went into spontaneous "remission" from 2004-2006 - two wonderful years in which I didn't have a single ache or pain, where 5 or 6 hours sleep was plenty enough and I could suddenly do anything I wanted sports-wise etc. During those two years I caught colds and got sore throats and sniffles just like everyone else.

I came out of remission in 2006 and things got steadily worse, far worse than before and I was diagnosed with lupus in early 2007. Yet again, not a sniffle.

There have to be some upsides :hehe:

Katharine
 

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Discussion Starter · #5 ·
well it's good to know that I'm not alone and this is normal. I'm gratefull for not getting sick, but wasn't sure if that was normal with lupus. One of the few perks. I feel bad enough as it is most of the time, so don't need anything else on top of it.

I don't get flu shots either. Guess I don't really need them! :)
 

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Do you know, I also haven't any sort of virus or anything like that since I had a severe case of tonsilitis a year ago! Everyone around me got colds in the winter, and a couple of times I thought I was coming down with one (sniffly nose, cotton wool head, temperature) only for it to never come to anything. I just assumed that my immune system was in good nick, but that might not be the case after all! The thing about some areas of the immune system being overactive and some underactive kind of interests me too as I seem to be getting thrush quite often, as well as stomach pain and nausea. It's just very strange!
 

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Add me to the list, haven't had a uti in over 10 years and only had one bad virus in that time too. I don't get the flu shot because of an allergy to egg and it hasn't made any difference.

Scorpio I am wondering if you have tried acidopholus capsules which you will find refrigerated at your pharmacy. They can be really good for persistent thrush problems and bloating, stomach upsets, nausea etc. Thrush can be the bane of my life sometimes and the acidopholus helps restore normal bacterial balance to the stomach. Gets me back to normal in that respect (only normality I have sometimes :lol: )

love
Lily
 

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Hi Lily,

That's another thing I really don't get any more -UTIs, which is amazing considering I don't empty my bladder properly (urodynamic testing revealed I retain about 300mls of urine every time I urinate) which you would think would make my bladder a ideal breeding ground for bugs!

Thanks for the tip about acidopholus - just found it online from Holland and Barratt (a health food shop here in the UK). I have been taking a mulitivitamin with probiotic supplement, which has helped me a bit, but this looks even better - thanks!
 

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Hello and welcome.

I do not catch colds easy at all yet suffer with chronic sinusitis and have most of my life. We are all different and remember, your Lupus is not my Lupus...everyone is different.

Keeping that in mind is always good as one can not and should not compare themselves to others. I do hope that your Lupus is kind to you and that you never catch another cold or virus ever again.:wink2::wink2::wink2::wink2:
 

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I have found this thread so interesting, I had never had a uti till I had lupus now I constantly have one. I dread the family catching anything as the germs set off my lupus neuro symptoms. The immune system is so complex, I have read up on it a few times but it goes over my head. It is interesting to see how lupus affects us all similarly yet differently!!!

Deb
 

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Discussion Starter · #11 ·
it is interesting, and confussing. I have a friend that has lupus and she catches a virus every month.

I also take a probiotic, but not for uti's. I take it for yeast infections. I was getting them every month before I started taking it and now I'm fine in that area.

the bladder is a whole different thing I have qustions about but I'll post a new question in regards to that............
 

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Howdy Goony,
Like you I find I have almost no colds, flu or "normal" diseases. There are some like us and then there are the unfortunates who on top of Lupus manage to catch every bug for a thousand miles around. As with all of this nutty disease, no rhyme or reason to it.
Hang in there.
Douglas+
 

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Incredably strong constitution and immune system.

No colds, flue or nasties.

Lupus however sends me all sorts of challenges:)

Nicky
 

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scratch my earlier post... I haven't been sick with a cold in years... but I did get my 1st UTI last year during a major lupus flare, hmmmmmmmmm darn disease!!!!
 

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shush :p

I was only saying to hubby last week that it's been ages since I had any virus's or cold's,
& guess who started with a really bad cold & cough last Sunday:rotfl:

I do have my flu jab every year though, I'm Asthmatic too so I always feel better to be safe. :)
 

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I think there is something in this for the researchers. I too have not had a cold or flu now for 7 years. My view is that it has something to do with the depletion of white cells due to my medication. That is where I have always thought the principal defect is. Beforehand I would suffer colds at the drop of a hat.
Now I'll probably get swine flu this winter.
 

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How interesting! I seem to be weirdly immune to all the viruses that my two small children and husband catch... but then succumb to bacterial infections (eg strep throat) from nowhere. I always feel like I am on another planet bug-wise from my family. I also had years of remission (age 16-21) - it's just a weird disease, no way round it...

xH
 

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It's much more rare for me to get a cold or flu, too, since being diagnosed.

I do get the flu shot every year, and still catch stmach/gastrointestinal things (unless it's just my body acting up or reacting to foods or meds). Then again, as I typed in a recent post, I spend most of my days feeling like I'm coming down with something, or like I've got a forever version of partial flu. Allergies only confuse the picture more.

I do have cervical dysplasia, which, I've read, is more common in women with lupus. I'm due for another check-up, but so far, it's not gone away. Most people's immune systems will fight off the mild hpv infections within a year or so, and the cells will return to normal. I'm going on three years here...

Yes, so what is the deal? Overactive in some ways, underactive in others? I want to have all of the answers!
 

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Hello again Hardcandy,

I'm afraid that with lupus, the only sure answer is that no-one (not even the most eminent specialists) has all the answers.

The answers are ever changing, variable and totally individual.

The only predictable thing about lupus is that it is not predictable.

Sorry, but that's the way it is :hug:

Katharine
 

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When I started feeling 'unwell in Aug 04, I caught every possible but there was to catch and I was basically perpetually sick on top of everything else. Since leaving high school I've barely caught a thing. Just 2 mild colds last year and nothing so far this year!
 
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