Joined
·
1 Posts
Hi all, I'm new to the site and can't believe the way all the pennies are dropping! I have battled for the last 4 years to get doctors to listen - I have been told it is all in my head (by a neurologist, no less!
), it's my age, had my blood tests results ignored, had a rheumatologist look at my face and tell me I haven't got Lupus (I paid for his consult too!), have a GP that treats me like I'm a Hypochondriac (actually that's my husband), and an unsympathetic husband! Ive even had brain surgery for a cerebral aneurysm!
Yesterday I see a new Rheumatologist who (apart from looking like she was going to personally shoot every doctor I have seen in the last 4 years) said:
"You've got Lupus - blood tests will confirm it - it was obvious from the ones you had last year that there was something very wrong - why didn't they follow it up?"
I've spent the last 24 hours reading about my symptoms being listed on Lupus fact sheets, symptoms which I have had for the last 4 years, and still can't quite get to grips with actually KNOWING that I'm not daft, there is a name for it, I can live with it, and now I can get on with my life instead of being in limbo and feeling stupid!
THANKYOU EVERYONE!
Jen (aka Tigs)



:
Yesterday I see a new Rheumatologist who (apart from looking like she was going to personally shoot every doctor I have seen in the last 4 years) said:
"You've got Lupus - blood tests will confirm it - it was obvious from the ones you had last year that there was something very wrong - why didn't they follow it up?"
I've spent the last 24 hours reading about my symptoms being listed on Lupus fact sheets, symptoms which I have had for the last 4 years, and still can't quite get to grips with actually KNOWING that I'm not daft, there is a name for it, I can live with it, and now I can get on with my life instead of being in limbo and feeling stupid!
THANKYOU EVERYONE!
Jen (aka Tigs)