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Discussion Starter · #1 ·
i feel terrible:(:( my head is going to explode i ache all over. my teenage son is doing my head in, and i just finished work. i think i may have to call in sick (again). my next apt with rheumy is aug 4th . i am sorry for just coming on and moaning , i didnt even say hello sorry.
This is starting to really get me down now i dont know how long i can keep saying I am alright, and smiling, i just want to cry.
 

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Hi Angie,
I feel the same way, i just want to feel somewhat normal again.

Sand.
 

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((((((((((Angie))))))))))

Just wanted to say your not alone in how you feel and sure hope you get to feeling a bit better. Maybe you should try and get the appointment moved up before August 4th.
 

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:grhug: Angie,

I am sorry that youre feeling bad at the moment, please try to get some rest and de-stress yourself (bit hard with a hormonal teenage son around, but try)!

Have you tired to contact your specialist via secretary to let them know how bad you are! Perhaps they could fit you in for an emergency appointment at the end of a clinic session!

Take care Angie!
Love
 

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(((Angie)))

I am sorry that you are feeling so rotten. :hug:

I agree with Lesley, could you call your rhumey and tell them your symptoms and get in sooner?

Take care and please let us know how you are doing.

Love,
Lyn
 

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Angie,

Hope today is a better day for you!

Lots of hugs,
Love
 

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Hello Angie :hug:

I'm so sorry you're feeling this bad right now. I think we've all been through days like this at some stage and can all feel for you. I don't really know what to say to help except that you have to rest as much as you can and leave the worrying until later. I know that's so easy for me to say and I know how hard it is to do but you really have to dish out loads of TLC to yourself.

I too suddenly got to a stage where smiling and pretending everything was alright just wasn't working for me. First off I realised that tiredness is my worst enemy. Thankfully once I get rid of pain I usually sleep well but well doesn't mean it is enough. My need for sleep often exceeds the "norm" and I HAVE to take naps or have long lie-ins in the morning. If I don't sleep, I feel terrible in every way.

The second thing is that you simply can't pretend it's OK all the time to everyone so I changed my attitude a little and now don't say "I'm fine" and smile sweetly if I'm not (I was finding that that smile was looking more like a grimace :lol:) and I simply say "today's not a very good day". I don't wallow in it or make people uncomfortable and I quite quickly go on to talk about something else but it's funny, just the simple fact of acknowledging to someone else (even people who are just acquaintances or colleagues) that it's not a good day makes it easier for me to get through it.

Those are just a couple of things that help me. With time you will find what helps you most. I'm still learning on that score and I think that everyone here would agree that it's an ongoing process. Also, there will always be days when it all just seems a bit much but knowing that they will go and we'll feel brighter after helps us get through those days.

If you can't get an appointment with the rheumy, would your GP be able to help? I have found mine invaluable over the last few months and he has stepped in and really done a lot to help. I know I'm very lucky and that he is a real gem but even with him I used never to complain until I got to the stage where I realised I just couldn't do this alone.

huge hugs and hope you're feeling a lot brighter today :grouphug2:

Katharine
 

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Discussion Starter · #8 ·
thanx

thankyou all for your kind words and support.
i have taken today off as yesterday was hard and my knees and head hurt soooo much . will try to go back tommorow . its just i cant always stop and rest when i need it i HAVE to work and have 3 children to care for . my husband is great but does sometimes get grumpy when i take time off work:rolleyes:.

I will ring my best mate later as she doesnt mind me having a good old moan, and always tries to cheer me up:hehe:.Then a nice long bubble bath , with a cup of horlicks yum yum and some chocy:rotfl:. that always seems to work.
 

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topamax

hello angieb,
I wanted to tell you my head hurt for years. I had chronic migranes. My Doctor put me on Topamax and I can function again. Good Luck. I hope you get relief soon.
Mary Ann:)
 

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SO Sorry you feel so sick and hope today is better.
Dont feel bad because you cry, I cry all the time and also feel very sorry for myself which I know is stupid as many are far worse than me
Try to rest when you can
As for your other half being grumpy perhaps he is just worried and doesnt want to say so ? I know I though mine was being grumpy until he said he was scarec about it all
I did get The Lupus book by wallace and it is a very helpful plain English book . It doesnt scare monger and yet tells it as it is. Worth getting for those of us who are new to LUpus


I am sorry for you but you are not alone
Thinking of you and sending happy thoughts
Pam
 
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