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Not MS now Lupus?

430 Views 6 Replies 7 Participants Last post by  KarolH
I have just found this site as I have just had blood taken for Lupus tests. To cut a very long story short I have been tested for various things over the last 2 yrs (MRI, blood tests, Lumbar Puncture)

I had eye disturbances which led me (after a year) to a Neurologist who has performed tests for MS. These have come back as a "negative for now". He has recently sent me off for the various Lupus blood tests.

I just thought i would list some of the stuff I have as I am very confused to see if anyone is in the same boat or if anyone has any words of wisdom

Here goes
My MRI came up with areas of inflammation last year. Neuro couldn't say what has caused it.

I have had intermittent attacks of pins and needles, always down left hand side usually in hand, arm and sometimes leg.

Face numbness. Most mornings wake up with a slight numb feeling in mouth, can progress to cheek.

My hands swell in the heat and my feet feel burning hot.

I have recently had a on/off tick in my left eye which is not noticable when you look at me but I can feel it inside.

When tired I get a headache, again down the left hand side of my head.

I have noticed that I get intermittent small clear liquid filled blisters on the palms of my hands. These itch. Again seem to appear when stressed or tired.

I think thats it. Thanks for reading 'my story'. I hope some of you can help! Even if its just to say "Me too".

Kind regards

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Hi Jo,

The doctors initially thought I had MS, but the usual tests all came up negative. After years of testing I found out I had Lupus. The way I have it really mimics MS with the nerve and muscle involvement.

Some of your symptoms are similar. I do have tingling and numbness. Initially it was just the lower left leg, then it spread to the right. Finally it went to the arms and face. The headache kicks in when I am flaring. Occasionally the feet will really burn due to the neuropathy. My MRI's also show white matter lesions that are not in the typical pattern for MS.

Was your MRI of just the head or did it include the cervical and thoracic spine?

I hope you get your results back quickly.

Take care,
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