Hey Jo and welcome to the forum!!
I went through a small MS or what? debate before I was diagnosed with cns lupus and aps. I had several brain MRIs that were perfectly normal and had no oligoclonal bands in my cerebrospinal fluid.
Like Katharine and Lazylegs have said there is a syndrome some people with or without lupus have that causes blood to clot more easily than it should; it's called Hughes' syndrome or antiphospholipid syndrome and it can cause MS-like symptoms... Do you have any idea if you have been or are being tested for it?
The tests for Hughes' syndrome are the anticardiolipin antibodies and the lupus anticoagulant. They are blood tests and can be easily run at most labs. You can find the classification criteria for Hughes' on top of the "related conditions" part of this forum:
http://www.thelupussite.com/forum/sh...ad.php?t=52667
You might also want to visit: www.hughes-syndrome.org for more information on APS.
Are you receiving any treatment for your symptoms at this point? Are you being referred to a rheumatologist or is the neurologist waiting for the lupus blood tests to come back before referring you? In any case your neurologist sounds very well-informed and thorough!
Ah! One other question actually; when you say you had eye disturbances what do you mean exactly? Have you seen an eye doc for this?
Hope you get to the bottom of what's going on soon!:bigsmile:
Zoi
I went through a small MS or what? debate before I was diagnosed with cns lupus and aps. I had several brain MRIs that were perfectly normal and had no oligoclonal bands in my cerebrospinal fluid.
Like Katharine and Lazylegs have said there is a syndrome some people with or without lupus have that causes blood to clot more easily than it should; it's called Hughes' syndrome or antiphospholipid syndrome and it can cause MS-like symptoms... Do you have any idea if you have been or are being tested for it?
The tests for Hughes' syndrome are the anticardiolipin antibodies and the lupus anticoagulant. They are blood tests and can be easily run at most labs. You can find the classification criteria for Hughes' on top of the "related conditions" part of this forum:
http://www.thelupussite.com/forum/sh...ad.php?t=52667
You might also want to visit: www.hughes-syndrome.org for more information on APS.
Are you receiving any treatment for your symptoms at this point? Are you being referred to a rheumatologist or is the neurologist waiting for the lupus blood tests to come back before referring you? In any case your neurologist sounds very well-informed and thorough!
Ah! One other question actually; when you say you had eye disturbances what do you mean exactly? Have you seen an eye doc for this?
Hope you get to the bottom of what's going on soon!:bigsmile:
Zoi
