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Not MS now Lupus?

433 Views 6 Replies 7 Participants Last post by  KarolH
I have just found this site as I have just had blood taken for Lupus tests. To cut a very long story short I have been tested for various things over the last 2 yrs (MRI, blood tests, Lumbar Puncture)

I had eye disturbances which led me (after a year) to a Neurologist who has performed tests for MS. These have come back as a "negative for now". He has recently sent me off for the various Lupus blood tests.

I just thought i would list some of the stuff I have as I am very confused to see if anyone is in the same boat or if anyone has any words of wisdom

Here goes
My MRI came up with areas of inflammation last year. Neuro couldn't say what has caused it.

I have had intermittent attacks of pins and needles, always down left hand side usually in hand, arm and sometimes leg.

Face numbness. Most mornings wake up with a slight numb feeling in mouth, can progress to cheek.

My hands swell in the heat and my feet feel burning hot.

I have recently had a on/off tick in my left eye which is not noticable when you look at me but I can feel it inside.

When tired I get a headache, again down the left hand side of my head.

I have noticed that I get intermittent small clear liquid filled blisters on the palms of my hands. These itch. Again seem to appear when stressed or tired.

I think thats it. Thanks for reading 'my story'. I hope some of you can help! Even if its just to say "Me too".

Kind regards

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Hello Jo and welcome :)

There are quite a few people here who have had suspected MS become either lupus or APS (Antiphospholipid syndrome - aka Hughes syndrome aka "sticky blood).

Many APS symptoms are quite similar to those in MS and I should think that the blood tests he has asked for include those. One of them is confusingly called the lupus anticoagulant test but it is a test for APS and not lupus.

The doctor is probably also running other tests such as ANA (a screening test for many auto-immune diseases) and possibly more specific antibody tests which can determine which type of auto-immune disease.

The symptoms of lupus are so varied that many of us here may share some of your symptoms but not all, others will share other symptoms...

bye for now,
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