Hi all just wanted to introduce myself ,
not really sure if I belong here , however I am 26 and have been dealing with an abundance of re-occuring of unpleasant symptoms on and of for quiet some years, these are :
- aches in my joints sometimes only one or two sometimes the lot
-constant fatigue
- blurred vision
- raynauds (unless I can seem them I am not aware I have hands and feet 80% of the time
- nailfold telangictasia (unsightly but also annoying as they constantly burst and bleed)
- abdominal pain (had my gallbladder out aged 13 , but still have attacks)
- dyspepsia
- rashes on my face , palms and scalp
- difficulties sleeping
- unexplained fevers
- unbearable PMT
- depression and anxiety attacks (at times when I dont feel remotley anxious)
- hair loss
-low iron levels
-difficulties swallowing
Have always belived that these things were random occurences but in the last two years I have been getting this weird thing were I suddenly develop extreme pain in all my joints and basically seize up and am more or less unable to move. This usually responds well to anti-inflammatories and painkillers but it got me wondering if these random occurences werent actually so random after all .
When ever Ive so much as suggested this to any of the G.P's ive seen in the past I always found them to be relativley unsupportive and feel that any tests(usually just routine bloods) they have done been in an attempt to fob me off. When these have come back negative Ive never bothered to pursue the matter and have felt like a hypocondriact and just tried my best to manage these symptoms any way i can.
Had the latests bout of this joint thing about two weeks ago and decided that it was time to get to the bottom of this . So I hobbled to the doc's, he seemed quiet understanding and did some bloods (ANA & RF). So I left pretty pleased with myself as to date none of the other Docs Id seen had ever bothered to get that far.
Got the results back today apparently I have a weak positve result for RF and negative ANA. Doc suggested that may be a result of some sort of viral infection. My response was very good ,that can explain the instances where all my joints are effected but what about the other stuff??? His response was to tell me that he had three patients like me with lots of complaints and that there was no where he could refer us because of our none specific symptoms????? He then went on about chronic fatigue syndrome (as far as I am aware that dosent cause all the stuff I experience or does it ?) Anyway to cut a long story short he told me he'd keep prescribing me anti-immflamatories / pain relieve etc and when I told him I couldnt keep taking that all the time because it irritates my stomach and makes me vomit bile he threw in a prescription of omeprazole for good measure . Shouldn't be to hard on the guy, because actually he's been one of the better Doctors Ive seen.
Anyway he's gonna repeat the RF in a couple of months and depending on the results he said we will go from there but that was only because I looked like I might burst in to tears by the end of the appointment.
Am supposed to see a G.P who's specialism is dermatology on monday with regards to my skin complaints so maybe at least I will get thoose sorted.
Sorry for the long post ,but really am at my wits end with all this stuff though I am pretty assertive usually , I find Doctors quiet intimidating
Any ideas about how I should proceed would be most appreciated
Thanks
not really sure if I belong here , however I am 26 and have been dealing with an abundance of re-occuring of unpleasant symptoms on and of for quiet some years, these are :
- aches in my joints sometimes only one or two sometimes the lot
-constant fatigue
- blurred vision
- raynauds (unless I can seem them I am not aware I have hands and feet 80% of the time
- nailfold telangictasia (unsightly but also annoying as they constantly burst and bleed)
- abdominal pain (had my gallbladder out aged 13 , but still have attacks)
- dyspepsia
- rashes on my face , palms and scalp
- difficulties sleeping
- unexplained fevers
- unbearable PMT
- depression and anxiety attacks (at times when I dont feel remotley anxious)
- hair loss
-low iron levels
-difficulties swallowing
Have always belived that these things were random occurences but in the last two years I have been getting this weird thing were I suddenly develop extreme pain in all my joints and basically seize up and am more or less unable to move. This usually responds well to anti-inflammatories and painkillers but it got me wondering if these random occurences werent actually so random after all .
When ever Ive so much as suggested this to any of the G.P's ive seen in the past I always found them to be relativley unsupportive and feel that any tests(usually just routine bloods) they have done been in an attempt to fob me off. When these have come back negative Ive never bothered to pursue the matter and have felt like a hypocondriact and just tried my best to manage these symptoms any way i can.
Had the latests bout of this joint thing about two weeks ago and decided that it was time to get to the bottom of this . So I hobbled to the doc's, he seemed quiet understanding and did some bloods (ANA & RF). So I left pretty pleased with myself as to date none of the other Docs Id seen had ever bothered to get that far.
Got the results back today apparently I have a weak positve result for RF and negative ANA. Doc suggested that may be a result of some sort of viral infection. My response was very good ,that can explain the instances where all my joints are effected but what about the other stuff??? His response was to tell me that he had three patients like me with lots of complaints and that there was no where he could refer us because of our none specific symptoms????? He then went on about chronic fatigue syndrome (as far as I am aware that dosent cause all the stuff I experience or does it ?) Anyway to cut a long story short he told me he'd keep prescribing me anti-immflamatories / pain relieve etc and when I told him I couldnt keep taking that all the time because it irritates my stomach and makes me vomit bile he threw in a prescription of omeprazole for good measure . Shouldn't be to hard on the guy, because actually he's been one of the better Doctors Ive seen.
Anyway he's gonna repeat the RF in a couple of months and depending on the results he said we will go from there but that was only because I looked like I might burst in to tears by the end of the appointment.
Am supposed to see a G.P who's specialism is dermatology on monday with regards to my skin complaints so maybe at least I will get thoose sorted.
Sorry for the long post ,but really am at my wits end with all this stuff though I am pretty assertive usually , I find Doctors quiet intimidating
Thanks