Hi everyone,
Recently I posted about abnormal blood work that came back. My Rheumatologist called me at home the other evening to discuss the results and told me that I have to come into the office to discuss starting cumadine for blood thinning purposes. He said that the numbers for my APS/Hughes syndrome were off the chart and the daily aspirin is just not working.
I called my GI doctor today to make sure it was ok for me to go this route since I do not have a stomach due to severe ulcer disease. She is concerned with a bleed out in my intestines and told me to watch out for dark stools or anything unusual. If I notice anything go right to the Emergency Room.
Apparantly, It is now confirmed that I have Lupus, Raynauds, Hughes Syndrome and Sjrogens along with high antibodies of SCL70, indicative for scleroderma yet I have no signs of that as of right now.
The generic Plaquenil has reeked havoc with my intestines so they are switching me to the real Plaquenil. The doctor said that with out a stomach I may have issues with this too, and if so then we would have to look at IV Cytoxin, Methotrexate, or something else.
I googled cumadine and do not like what I am reading. Is anyone else on this drug? If so, can you tell me how often you have to get your INR checked?
I am venting here but I am so darn tired of health problems......as I am sure you all are too. I have 3 very healthy siblings, thank god, yet I sit here and ponder all of this and today I have found myself in tears. I am just so sick and tired of being sick and tired.
Sorry for venting but I just needed to let it out. I do hope you are all well.:wink2:
Recently I posted about abnormal blood work that came back. My Rheumatologist called me at home the other evening to discuss the results and told me that I have to come into the office to discuss starting cumadine for blood thinning purposes. He said that the numbers for my APS/Hughes syndrome were off the chart and the daily aspirin is just not working.
I called my GI doctor today to make sure it was ok for me to go this route since I do not have a stomach due to severe ulcer disease. She is concerned with a bleed out in my intestines and told me to watch out for dark stools or anything unusual. If I notice anything go right to the Emergency Room.
Apparantly, It is now confirmed that I have Lupus, Raynauds, Hughes Syndrome and Sjrogens along with high antibodies of SCL70, indicative for scleroderma yet I have no signs of that as of right now.
The generic Plaquenil has reeked havoc with my intestines so they are switching me to the real Plaquenil. The doctor said that with out a stomach I may have issues with this too, and if so then we would have to look at IV Cytoxin, Methotrexate, or something else.
I googled cumadine and do not like what I am reading. Is anyone else on this drug? If so, can you tell me how often you have to get your INR checked?
I am venting here but I am so darn tired of health problems......as I am sure you all are too. I have 3 very healthy siblings, thank god, yet I sit here and ponder all of this and today I have found myself in tears. I am just so sick and tired of being sick and tired.
Sorry for venting but I just needed to let it out. I do hope you are all well.:wink2: