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I have had lupus for approx 5 years but have never joined a chat about it. Recently having more issues with disease and family . Not alot of people to talk to it seems no one really understands and I don't want to be labelled a complainer. Just thought it might be nice to have a place where other people can get it, maybe have some friends who are "complainers" too.
 

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Hi ellenrose,
I have had SLE for two years now, you are right when you say not a lot of people to talk to,but this site is great, loads of understanding people and we are all there for each other. Can't wait to switch on computer each day now, this site has opened a whole different world for me and I am really glad I found the site.
You can rant, rave and complain as much as you like because we all know what Lupus throws at us and we can help each other to deal with it all
Hope to speak to you again soon
Take care
Love
Meryl
 

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Hi ellen

I have just replied to your other post but just want to welcome you 'officially' :)

I feel the same way about the forum as meryl!....couldn't have put it better :)
I hope you enjoy the forum as much as I do.

how does your lupus affect you?what meds are you on?

look forward to hearing more from you.
bye for now..karen x :flowery:
 

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Discussion Starter #4
Thanks for the welcome. My lupus seems to mostly be affecting my well everything. I have neuropathy, Thyroid, some CNS, stroke, osteoarthritis, Raynauds, Gi\I problems, fluid retention, anemia, and on and on.....

I take the minimum meds I can because at one point I was up to 26 pills a day. Now I only take ten. I I got sick of doctors just giving me more of stuff that wasn't going to do anything) I think I have a high pain tolerance because apparently I shouldn't be able to do anything so lucky for me. I think when I see my specialist I might ask for some naprosyn or dilaudid though because my back is just making my life unbearable right now but maybe I'll feel better in a week. Thanks for asking and I am glad I can come and talk here. I hope you all are well Take care Ellenrose
 
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