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63 Posts
It's been a long time since I've logged on here. Mainly because I haven't had much activity in my journey to figure out what I have.
My Rheumy changed me from "mild" Lupus to Undifferentiated Connective Tissue Disease because I never got a 4th criteria but my ANA remains constant and high. My Complements 3 & 4 are always off but nothing else really shows up.
Last Mon I had double vision which I thought was weird but nothing horrible to run to the doc for. Oooopps! I did call and my vacationing primary told me to get my butt to Urgent Care. By this time the dbl vision was gone.
Referred to an Opthomologist who didn't expect to find anything unusual but he did. I have optic nerve damage in my left eye. Apparently unusual unless you've had a stroke or mini-strokes. I don't fit the mold for a stroke, just turned 50 this month, not obese, not diabetic, not on meds, no high blood pressure.
I had to get a full Lupus panel, and have scheduled a more intensive eye test. The nerve damage does not cause double vision, that's still a mystery. I am apparently blind in some small areas in my left eye.
Anyone else have optic involvement? I read the sticky w/ the Lupus and the Eye info and none of that is encouraging.
At the moment I'm thinking this might be the kicker that puts me into an actual dx of SLE and I'm really paranoid about losing my sight or having something like MS.
Any responses would be appreciated.
My Rheumy changed me from "mild" Lupus to Undifferentiated Connective Tissue Disease because I never got a 4th criteria but my ANA remains constant and high. My Complements 3 & 4 are always off but nothing else really shows up.
Last Mon I had double vision which I thought was weird but nothing horrible to run to the doc for. Oooopps! I did call and my vacationing primary told me to get my butt to Urgent Care. By this time the dbl vision was gone.
Referred to an Opthomologist who didn't expect to find anything unusual but he did. I have optic nerve damage in my left eye. Apparently unusual unless you've had a stroke or mini-strokes. I don't fit the mold for a stroke, just turned 50 this month, not obese, not diabetic, not on meds, no high blood pressure.
I had to get a full Lupus panel, and have scheduled a more intensive eye test. The nerve damage does not cause double vision, that's still a mystery. I am apparently blind in some small areas in my left eye.
Anyone else have optic involvement? I read the sticky w/ the Lupus and the Eye info and none of that is encouraging.
Any responses would be appreciated.