Hi
Am new here but not new to Lupus. Have had it 25 years now with all the 'add-ons' as well. Am 61 now and was hoping by now it would be more manageable. But am still plaqued by fatigue and depression. Of course it is great not having all the pain and flares and Doc says the lupus is not active but no matter how many ways I try - resting a lot, eating well, gentle excercise , blah, blah .... it still catches me out.
Still cant make plans cos dont know how I will feel. And as soon as I feel well enough to do any kind of socializing I knocks me for six.
For example - had a good few days last week and managed to get a few things done in my new home (that I moved into in November) was actually getting some good nights sleep and felt 'OK' then looked after my 3 year old grandson for a day on Sat (which was mainly playing 'cars' on the floor, taking him to hairdressers and watching dvds - nothing too strenuous) and woke up Sunday feeling yeuk again with no energy at all. Couldnt even get dresssed all day, Monday not much better but did manage a bath and getting dressed, today (Tuesday) a tiny bit better - managed a shower and dressed by 11.30 but not sure if have energy to walk to shop but running out of food so will have to. So it will probably be another couple of days of doing very little and feeling bad till I recover enough. That will be nearly a week! How are you sposed to cope like this? When I was younger I was able to 'push through' the pain and fatigue till I crashed and then got up and started again but now its seems harder and I dont have the same reserves.
I live alone so have no assistance (not that I would want it because when I feel bad I dont want to see or talk to anyone anyway!) My family are great and very supportive although dont live that close.
And so it goes on! Does anyone else have the same thing at this age - without so much pain etc but unbearable fatigue and depression?
(Just ordered a tee shirt from the States that says 'Lupus Sucks' - probably wont wear it but it made me feel better to buy it!)
Any feedback would be appreciated
Am new here but not new to Lupus. Have had it 25 years now with all the 'add-ons' as well. Am 61 now and was hoping by now it would be more manageable. But am still plaqued by fatigue and depression. Of course it is great not having all the pain and flares and Doc says the lupus is not active but no matter how many ways I try - resting a lot, eating well, gentle excercise , blah, blah .... it still catches me out.
Still cant make plans cos dont know how I will feel. And as soon as I feel well enough to do any kind of socializing I knocks me for six.
For example - had a good few days last week and managed to get a few things done in my new home (that I moved into in November) was actually getting some good nights sleep and felt 'OK' then looked after my 3 year old grandson for a day on Sat (which was mainly playing 'cars' on the floor, taking him to hairdressers and watching dvds - nothing too strenuous) and woke up Sunday feeling yeuk again with no energy at all. Couldnt even get dresssed all day, Monday not much better but did manage a bath and getting dressed, today (Tuesday) a tiny bit better - managed a shower and dressed by 11.30 but not sure if have energy to walk to shop but running out of food so will have to. So it will probably be another couple of days of doing very little and feeling bad till I recover enough. That will be nearly a week! How are you sposed to cope like this? When I was younger I was able to 'push through' the pain and fatigue till I crashed and then got up and started again but now its seems harder and I dont have the same reserves.
I live alone so have no assistance (not that I would want it because when I feel bad I dont want to see or talk to anyone anyway!) My family are great and very supportive although dont live that close.
And so it goes on! Does anyone else have the same thing at this age - without so much pain etc but unbearable fatigue and depression?
(Just ordered a tee shirt from the States that says 'Lupus Sucks' - probably wont wear it but it made me feel better to buy it!)
Any feedback would be appreciated