[minimii]

Hi everyone,
First, sorry my bad english, it´s not my native language..
I would like to ask you about joint and muscle pains in lupus.

I am 27 years old woman.
Over three weeks ago I started to feel pain in joints (first in fingers and toes) Now that pain has gotten worse everyday and it has spread all over my body. In the morning my fingers are stiff and painful, especially when I try to move them (open and close to fist).

Couple of days ago I almost couldn't walk at all, because suddenly both of my legs were hurting so much. I felt pain in the back of the knees when I tried to straighten my legs. Also my soles have been hurting a lot when I put a weight on them (and they hurt also when I lay on the sofa). Sometimes I feel also sharp pain in ankle and everywhere in the foot muscles.

There is pain also in the wrists and in the arms. It´s difficult to explain all this in english, but it feels like suddenly I have became like old granny whose body has started to fall apart and every part of it hurts. I tried to take ibuprofen but it didn't help at all.

So, please could you give me an example what kind of pain you have in lupus?
Is it normal that pain "jumps" from one part of the body to another one?
And also what wonders me is that even my joints are hurting, they are not swollen...?

And one more thing...I have a little bit fever. Not all the time, but suddenly I might start to feel very sick and I got fever like almost 38c and then in few hours fever is suddenly gone! It´s very strange.

The reason why I´m scared I´ll have lupus is, that sometimes I got a rash in my face that looks exactly like the rash in lupus. Now I don't have the rash, but should I have it all the time if I have lupus?

I´m going to see a doctor in few weeks, but I would like to hear your opinions also, thank you so much!

 

[LolaLola]

Hello Minimii,
Lupus pain can often be in different parts of the body. Sometimes wrists, then knees or whatever ,it does not stay the same.
I also get sharp pains like having a large hot needle put under my skin, especially in the wrists.
Joints do not always swell in Lupus even when they hurt a lot. Also many people have Lupus but no rash.
I hope this helps and that you can understand it. What is your native language?
x Lola

 

[lazylegs]

Hi Minimii,

I am sorry to hear that your are in so much pain . It definitely sounds like you need to have your symptoms investigated. Many diseases share symptoms so it is hard to tell without the appropriate blood work and exam.

Good luck with your appointment. When you are with the doctor it is so easy to forget everything you want to say. I suggest you make a list of any symptoms you are having to take with you. You should also take a photo of your rash because it might not be present on the day of your appointment. In the meantime I suggest soaking in a warm bath or applying heat to the painful joints.

Take care,
Lazylegs

 

[Joandublin]

Hi Minimii

Yes the pain can go from joint to joint with Lupus. This is usually called 'flitting' joint pain.

Also with Lupus the joints tend not to be swollen so that can also fit with your symptoms.

The fevers can be a clue as well as many people with Lupus run low grade fevers.

Can you take some photographs of your rash when it is there? This can help your doctors.

Of couse it can be other things besides Lupus so keep an open mind on that. Make sure to write down all your symptoms and this will help your doctor.

Best of luck with your appointment
Joan:rose:

 

[Katharine]

Hi there and welcome

You have already recieved responses from the others about your pain. I would agree that it can travel to all sorts of places.

Whatever is going on it is true that you do need your symptoms investigating.

I also wanted to say that your English is very good. Where do you come from or what is your native langauge?

bye for now,
Katharine

 

[minimii]

Thank you so much for your answers, it´s nice when there are people who understand these pains Last night I didn't sleep almost at all. I woke up every 15 minutes just to feel the pain in foot or in hand or in shoulder...Very uncomfortable night. One of my granmothers have fibromyolgia and my other grandmother has rheumatoid arthritis and my grandfather has Raynayds.

Luckily I have a bathtub. I usually never use it, but perhaps now I could take a warm bath and see if it helps. I am going to meet a doctor in two weeks, but if these pains start to be unbearable then I go earlier. Now at least I got some new medicine called naproxen, I have to try if that helps. Btw, I am from estonia.

 

[Sage Hen]

Hello,

Everyone, has answered your questions vary thoroughly. I want to tell you,
I am very sorry you are in pain, and unable to sleep because of it. :

You may want to try, baths, rubs, pain relievers, heating pads or ice packs to help you, find some relief.. until, you can get things sorted out with your dr..

Best Wishes,
Sandy

 

[MichelleAnn]

Minimii,
I hate to say it but I have pain everyday. The pain- and bone- exhausting- tired- feeling is what bothers me most. I feel like I carry concrete blocks on my arms and legs all day. I hope you find relief. Everyone here has different symptoms with Lupus. This website will help you with all your questions and reading past posts that interest you. The people here are great~!! Take Care!!