Hi Jen,
Sorry to hear you are in so much pain. I can really identify with the weakness and pain you describe with your shoulders and arms, holding them above your head, it's a real challenge when flaring to even brush my hair and hang washing out.........forget it!
Is there anyway you can go to a walk in clinic or get in touch with some charities who might be able to at least assist in you seeing a doctor for a minimal charge. I note you were on Plaquenil before and it seems to have helped these symptoms for me quite a bit, they don't happen nearly as often and are not as severe when they do occur.
For the other pain not associated with weakness then are you able to at least get some anti-inflammatories prescribed? I find that OTC Ibuprofen I couldn't take but many of the prescribed ones help a lot.
sending hugs,
love
Lily
Sorry to hear you are in so much pain. I can really identify with the weakness and pain you describe with your shoulders and arms, holding them above your head, it's a real challenge when flaring to even brush my hair and hang washing out.........forget it!
Is there anyway you can go to a walk in clinic or get in touch with some charities who might be able to at least assist in you seeing a doctor for a minimal charge. I note you were on Plaquenil before and it seems to have helped these symptoms for me quite a bit, they don't happen nearly as often and are not as severe when they do occur.
For the other pain not associated with weakness then are you able to at least get some anti-inflammatories prescribed? I find that OTC Ibuprofen I couldn't take but many of the prescribed ones help a lot.
sending hugs,
love
Lily
