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Hi there,
this definately sounds like hives. Lots of people say they have them related to the illness. Some people say they get them from sun exposure and others for different reasons. When I began to get really ill I had 16 of these that came up over 2 weeks, I haven't had them like that though since I've been on medication. Now I get a few little tiny ones that I think would be bigger if it wasn't for the medications.

I would definately would mention it to your doc although it is nothing to be really concerned about.

Good luck, hope they go soon for you as they are a bit uncomfortable. I am sure that someone will be along to recommend something that you can put on them. You could try calamine lotion as this is always soothing for things like this but other than that I'm not sure.

Take Care

Cassie
 

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Another possibility would be swollen glands on your skull. I never realized you had glands there until it happened to me. They can hurt like the dickens and are tender when you touch them.

Take care,
Lazylegs
 

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Discussion Starter · #4 ·
cad;537141 said:
Hi there,
this definately sounds like hives. Lots of people say they have them related to the illness. Some people say they get them from sun exposure and others for different reasons. When I began to get really ill I had 16 of these that came up over 2 weeks, I haven't had them like that though since I've been on medication. Now I get a few little tiny ones that I think would be bigger if it wasn't for the medications.

I would definately would mention it to your doc although it is nothing to be really concerned about.

Good luck, hope they go soon for you as they are a bit uncomfortable. I am sure that someone will be along to recommend something that you can put on them. You could try calamine lotion as this is always soothing for things like this but other than that I'm not sure.

Take Care

Cassie
Hi Cassie. Thanks for the suggestion, however, I get hives (mainly on my neck and chest) and although they are indeed lumpy they are itchy rather than painful. The 'things' are my scalp are really REALLY sore!
 

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Discussion Starter · #5 ·
lazylegs;537175 said:
Another possibility would be swollen glands on your skull. I never realized you had glands there until it happened to me. They can hurt like the dickens and are tender when you touch them.

Take care,
Lazylegs
Thanks LL, that's interesting!....sounds very similar. I have lesions on my scalp but often get these 'lumps'. Within the past week they have come up again. I only get two or three at a time but they are incredibly painful to touch and I can actually feel them under my headband. They look like the start of a huge spot, but aren't! I didn't realise you could get swollen glands on your skull. I've just had another episode of hair loss near the area, so possibly related?
 

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hi
i have had these on and off for ages but just thought they were caused by stress. i had my hairdresser tell me what they looked like, she said it looked like i was getting acne type spots on my head but with no sign of them coming to a head! they really do hurt and i only 2 or 3 at a time.matbe i should tell dr about them its not something i had thought of.


NO DX:rolleyes:
 

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Discussion Starter · #7 ·
angieb;537224 said:
hi
i have had these on and off for ages but just thought they were caused by stress. i had my hairdresser tell me what they looked like, she said it looked like i was getting acne type spots on my head but with no sign of them coming to a head! they really do hurt and i only 2 or 3 at a time.matbe i should tell dr about them its not something i had thought of.


NO DX:rolleyes:
Hi Angie...yes, sounds exactly the same, but I don't have acne anywhere else and as you said, they never come to anything. Let me know what your Dr says please! I'm not due to visit the London Lupus Centre until May but I will bring it up then. Never thought of mentioning it before.
 

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i get something very similar, but mine are not painful but sore and itchy. i have mentioned them to my dermatologist who didn't give me a name for them just prescribed me a lotion to put on them over night and wash it off the next morning which seems to do the trick! Mine seem to pop up as and when they want Ive never noticed at pattern to it. they can appear anywhere on my scalp but tend to be mostly round the back near my neck and ears just in the hair line. I never had any until i started having symptoms of lupus and even when my lupus was not active i was still getting them from time to time.
 

· The Other Illinois Tammy
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Aggie,
I get a rash on my scalp that is part of the lupus. I am not sure we are talking about the same thing. If this continues you should talk with your gp and see if they would give you a referral to a dermy that might be able to help you with the lumps. You will want to be careful with the lumps on your scalp as they could get infected if they open up and my cause headaches and other symptoms. I am sure that they are nothing to worry about but better safe than sorry right. I hope that you feel better soon.
 

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Discussion Starter · #11 ·
onetay;537697 said:
Aggie,
I get a rash on my scalp that is part of the lupus. I am not sure we are talking about the same thing. If this continues you should talk with your gp and see if they would give you a referral to a dermy that might be able to help you with the lumps. You will want to be careful with the lumps on your scalp as they could get infected if they open up and my cause headaches and other symptoms. I am sure that they are nothing to worry about but better safe than sorry right. I hope that you feel better soon.
These 'lumps' are in addition to the rash that I have on my scalp. Whether they are part of the same condition, who knows, however, I will make a point of mentioning it the next time I go to see Dr D'Cruz. Thanks all for the advice.
 
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