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The vortex of insanity!
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OW!
My hips, knees, and wrists are in excruciating pain. I can't find a single position where they aren't killing me. I've been sitting here crying since 10 p.m. and it's now midnight. I swear it's spreading to my shoulders, but maybe thats just them being tense. I've taken I think a triple dose of ibuprofin and it's dont nothing. My mom hid my tramadol ages ago so I can't take that. I don't want to take tylonel with codein because i wont be able to wake up and I have to get a ton of stuff done for college tomorrow because i leave a week from today. I don't want to wake my mom up and cry at her because that won't be an option after a week from today and i need to get used to dealing with this by myself. Owwwwwww.
 

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Oh dear (((((((((hugs)))))))))

I see that things haven't improved for you. I think you're back home now?

Is there any news on getting an appointment? It really does sound like you need something to control this flare :hug: and the disease in general.

sorry, can't do more but whine away all you want,

Katharine
 

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I am sorry you are going through all this and hope you can get some help soon with it.
You really need a system set up to deal with urgencies for when you are away at college, assuming your usual rheumy is not accessible. I suppose you will be able to contact her but sometimes it's necessary to be checked out or get care locally You might not be able to travel. So it would be prudent to have some local contact with a specialist who would work with your rheumy.

It sounds as if your mom and you might need a frank discussion probably with an intermediary or your doctor about such issues as the tramadol.

You could ask about Quinacrine instead of the Plaquenil. Many people tolerate it better

All the best

Clare
 

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Sorry to hear you are in so much pain. I always find pain more miserable when I am trying to sleep. Once pain sets in I tend to tense up as if to fight it. That only makes things worse. If you are doing the same thing try some deep breathing and visualizing something you enjoy. It won't wipe out the pain but may help make it more tolerable.

Good luck with your studies.

Take care,
Lazylegs
 

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Oh... sorry to hear you are in so much pain.
It is always so much harder to deal with at night.

Have you tried doing a deep breathing exercise... following your breathing into or out of your body and focusing on that? Or a body scan where you scan your body from toe to head and back resting your mind gently on the different areas? Both of these will help you to relax a bit and take your mind away from the pain. There are some free meditations/body scans and stuff on iTunes in the podcast section. Go to podcasts and type in Body Scan.

Hope you are better when you read this and your preparation for college gets done.
You have not had the best of summers with that flare on holiday... do you think it is still blazing away?

Love
Sara
 

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Applesauce I'm so sorry to hear you're in such pain :sad: I can almost feel the pain myself for you :worried:

All I can say though is try to get as much rest as possible and hopefully things get better very quickly.

I know I'm the last person who should be saying this, but please try to remain positive. From my own experience a few weeks ago the stress just made me feel so much worse.
 

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Im very sorry to hear how much pain you are in. How are you feeling now? Are things any better at all?

I know you said you would have to learn to deal with these things yourself but that also involves making decisions like when its appropriate to take pain medication. You cant, on the one hand, be expected to deal with your disease as an adult and on the other hand have your pain medications hidden from you. Clare is right. I think its time for a frank discussion with your Mom.

I hope to goodness you can get some relief soon. Its horrible to be in so much pain. :hug: When are you seeing the Rheumy?

Gentle hugs to you
Joan:rose:
 

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The vortex of insanity!
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Discussion Starter #8
Thanks everybody. I am feeling a bit better today. That happened the night I had my second rituxan which is really really weird, and then last night I had a horrific nausea attack (which is particularly great since I have a paralizing phobia of throwing up), but so far today (though it's only 10 a.m.) I havent had any problems. My hips are still sore but not nearly as bad. I'm seeing my rheumy tomorrow so hopefully we can get some things straightened out before I leave on monday.
 

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Seriously Applesauce, I can NOT believe that your mom hid your tramadol. That is rediculous, doesn't your mom know that tramadol isn't even a narcotic? It's barely a step above tylenol. It's non-addictive plus you are a grown adult.
 
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