got a call from the doc...it's not s.l.e.....seems i have a tumor on my right lung....and all the inflammation and crazy bloodwork comes from something called paraneoplastic syndrome...it is the bodies response to cancer and apparently it is quite rare...anyone heard of this before. The doc said don't take anymore methotrexate and dropped the prednisone from 50 mg to 30 mg in one day and then says drop 5 mg every 2 days...well holy cow....have I got the shakes and can't sleep and losing weight and feel like crap....today I have 20 mg prednisone.....I see the oncologist on wednesday and I'm trying to be positive....oddly enough though...as the prednisone drops I seem to be able to walk better....this has been one crazy ride.
If anyone knows about paraneoplastic syndrome can you let me know ?
If anyone knows about paraneoplastic syndrome can you let me know ?