I can report back that I dont have porphyria - thats one good thing!
My Dermatologist is still referring me to St Thom's Photobiology Unit (Dr Sarkany) - to get to the bottom of which lights I am indeed sensitive for better treatment to be offered!
Clare.T;512342 said:These tests are rarely performed and certainly not part of routine. Probably because there are not many specialist centres and it costs. I think they only do it as part of studies or in certain cases when they need to find out the exact cause of a skin problem. But that is my speculation.
I think Lesley's doctor must have a very special interest and also she is investigating the possibility of Lesley having prophyria so maybe the phototesting has special relevance for that illness.
Perahps Lesley will have the chance to ask the doctor exactly why and why it isn't more often done for lupus
It would be interesting to know !
Interesting and so darn happy you do not have another thing to add to your list of illnesses.:wink2::wink2::wink2:greenhaggis;518354 said:Three samples!
Urine 24hour sample - light proof container
Faeces - foil covered container
Bloods - foil covered vial
None of these samples ust see light (damages results).