Hi Claire, Yes i totally agree my face depresses me much more than my actual disease because i have to look at it every single day !
My skin used to be lovely all white and even but i guess never again ! I have tried lots of different make ups but you can still see the marks underneath and it is normally so thick that it makes me look much older.
Do you have similar skin to me ? I also always have a bright red nose and i resemble a reindeer lol its ok for christmas but not the rest of the year.
I have my first ever dermo appt on Tuesday for a sore that i have had on my head for years !! It will just not heal. I am hoping that its Hughes/Lupus related and not anything else more serious to worry about.
I also have another Rheumy appt the week after and i will be taking my photo with me along with other ones of my legs which got terrible blood blister type spots on them !
I am hoping that they dont take me off Plaquenil as it has helped my fatigue and joint pain. I am a very funny case because all my bloods are negative but my GP and Rheumy both firmly believe that i do have Hughes and Lupus and are treating me with the relevant medications.
My specialist also does my bloods every 3 months and follows up with an appt to see him so i feel that i am being well looked after
Sorry i have gone on a bit !!
Lov Sarah x