Hi,
yup, it is confusing, but after a while you will get to know your body and learn how to modify your life accordingly, so hang in there.
Plaquenil does much more than affect sunsensitivity, it helps prevent autoantibody production, lowers the bad cholesterol, has slight blood thinning properties and is a mild antiinflamatory. It is definately a wonder drug that can not only treat existing disease but help prevent worsening. I'd highly reccoment it.
By the was, sun sensitivity comes in many forms. Many people don't get a rash. I could measure how much sun I'd had my how much proteinuria I had the next day, so it saw affecting my renal functin - not a good thing. Also you are not allone in reacting differently on different days. You still need to avoid the sun.
When you surf do you wear a wet suit? This will offer you great UV protection. Alternatively a "rashy" is an australian invention - a lycra swimsuit that looks like a light weight wet suit - high neckline, long sleves and long trousers/tights. These have a SPF of 80+ and are highly appropriate for surfing in summer.Then in is just your hands and face you need to protect and a good sunscreen can do that if aplyed frequently.
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