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I am really shocked. Went from seeing a GP (not the one I see now, I switched) who treated me as though I was full of "beans", to seeing my Rheumy who is terribly concerned.
Her report says that she suspects CNS disease from Lupus, and also vasculitis. She says that if I don't get significant turnaround in my condition, she does not feel I will be able to return to work. She has sent me to Neurologist, but the app't is not until a week from tomorrow. She does not want to wait, and wants me to go to hosp for pulse therapy with 1g solu-medrol, plus cyclophosphamide infusion as well. She wants this done tomorrow.
I know these are drastic treatments, especially the cyclophosphamide, I don't want that unless absolutely needed. I've also heard that the pulse pred can have some bad effects, and am feeling leery of that. However, if I am getting CNS damage from Lupus, I may need this, as I can't afford to lose my CNS - it is quite important to me.
Has anyone had a similar experience?
Can anyone tell me what they know of the side-effects of the pred pulse?
Has anyone had cyclophosphamide in this manner? She wants 500mg in 250cc normal saline infused over 2 hours.
Any help, thoughts would be appreciated. I am all alone and have no one here with whom I can discuss this issue.
Thanks.
Her report says that she suspects CNS disease from Lupus, and also vasculitis. She says that if I don't get significant turnaround in my condition, she does not feel I will be able to return to work. She has sent me to Neurologist, but the app't is not until a week from tomorrow. She does not want to wait, and wants me to go to hosp for pulse therapy with 1g solu-medrol, plus cyclophosphamide infusion as well. She wants this done tomorrow.
I know these are drastic treatments, especially the cyclophosphamide, I don't want that unless absolutely needed. I've also heard that the pulse pred can have some bad effects, and am feeling leery of that. However, if I am getting CNS damage from Lupus, I may need this, as I can't afford to lose my CNS - it is quite important to me.
Has anyone had a similar experience?
Can anyone tell me what they know of the side-effects of the pred pulse?
Has anyone had cyclophosphamide in this manner? She wants 500mg in 250cc normal saline infused over 2 hours.
Any help, thoughts would be appreciated. I am all alone and have no one here with whom I can discuss this issue.
Thanks.