Hi
Since Ive upped my steroids at the end of last week, the left eye pain and dropping and blurred vision I seem to get has completely disappeared and Ive noticed this before when steroids are increased to higher levels.
I have spent numerous hours at St Thomas Opthalmic Dept and whilst they have found iritis on numerous occasions and have taken photos of the back of my eye to keep a record (Kings also found I had optic neuritis when originally testing me for MS 3 years ago, when they found I had sle!).
My concern is that whilst my consultant is concerned at the eye symptoms I have, she doesnt really know what the problem is, although she does acknowledge there is a problem. She had a muscle test carried out to see if my eye dropped/drooped after looking up for 2 minutes, which it did, and she then tested me for myasthenia gravis (fortunately negative).
My concern is that as I say, since upping my steroids to get my sle under control again, my eye is not causing me any bother, so to me and my husband that confirms that there is an inflamatory thing going on there, what do you think?
Ive now had this problem for nearly 3 years and since I upped the pred last week, it has got worse over the past couple of months or so, to the extent that I have to take pain killers due to the pain behind the eye. Im loathed to go back up to London again until March when I have my appointment (although I can always ring if I need to and she will see me, she has said) as every time I end up going there, she cant find what the problem is. It can clearly be seen drooping in photos we take when it happens, which she acknowledges but I wondered if anyone had any thoughts on this at all please as Im at a loss. I dont think its an age thing (Im 44 years young lol with the body of an 80 year old at the moment!!).
Thanks in advance!
Hugs to you all
Julia
Since Ive upped my steroids at the end of last week, the left eye pain and dropping and blurred vision I seem to get has completely disappeared and Ive noticed this before when steroids are increased to higher levels.
I have spent numerous hours at St Thomas Opthalmic Dept and whilst they have found iritis on numerous occasions and have taken photos of the back of my eye to keep a record (Kings also found I had optic neuritis when originally testing me for MS 3 years ago, when they found I had sle!).
My concern is that whilst my consultant is concerned at the eye symptoms I have, she doesnt really know what the problem is, although she does acknowledge there is a problem. She had a muscle test carried out to see if my eye dropped/drooped after looking up for 2 minutes, which it did, and she then tested me for myasthenia gravis (fortunately negative).
My concern is that as I say, since upping my steroids to get my sle under control again, my eye is not causing me any bother, so to me and my husband that confirms that there is an inflamatory thing going on there, what do you think?
Ive now had this problem for nearly 3 years and since I upped the pred last week, it has got worse over the past couple of months or so, to the extent that I have to take pain killers due to the pain behind the eye. Im loathed to go back up to London again until March when I have my appointment (although I can always ring if I need to and she will see me, she has said) as every time I end up going there, she cant find what the problem is. It can clearly be seen drooping in photos we take when it happens, which she acknowledges but I wondered if anyone had any thoughts on this at all please as Im at a loss. I dont think its an age thing (Im 44 years young lol with the body of an 80 year old at the moment!!).
Thanks in advance!
Hugs to you all
Julia