Hey! I could really use some help in finding out whats going on with me! To begin with, in August I tried to be a kidney donor for this woman with SLE. I had finished most of the tests, and everything was looking good until they noticed protein in my urine. I am not sure on what measurement they use, but they said it was 100 of protein. They were not too worried about it, but decided to do a ana test just to make sure. My results were positive ana, 1:320 ratio and speckled pattern. Unfortunately, since they did not think it was going to be positive that was the only test I was given. Since my ana was postive and the protein problem, I could no longer be considered a donor. They were amazing doctors, and still talk to me about how I am doing. But, I did not have health insurance and was not experiencing any major symptoms besides fatigue and weakness. I attributed this to allergies, or maybe a passing illness. I am planning to start teaching in August, and thought I would wait until then to get checked out.(good insurance!) But, unfortunately, over the past six months my symptoms have multiplied and gotten worse. I decided it was time after months of extreme fatigue, weakness, heart racing,pressure on chest, light sensitivity, flustered and get red in face and lower arms,body temperature rising, muscle tension, irritability, achy joints(wrists and knees), excema and losing about 15 pounds from not being able to eat. I am not sure if this is because of stress and not feeling well or a gi problem. I went to a local emergency room, who did not seem interested and were slightly rude. I was given a sed rate and complement level test. (Sed rate 3, C4 complement low) They referred me to a rheumatologist. I was so excited about the appt. Thinking finally someone who can help me. I came very prepared, with a written long list of symptoms. The doctor only read it for a second, and handed it back to me without even finishing it! How can you be sure I am ok, if you do not even know all of my symptoms! She then asked if I had clumps of hair falling out, which I don't. Or if I had lesions on my body, again no. She then proceeded to tell me that some people just have a positive ana with nothing wrong and I seemed to be one of those people. She then walked out, after I had been waiting for hours, after staying no more than 20 minutes. She referred me to a gi doctor for the stomach problems, but what if its just stress causing these issues! I am very respectful and know they are trained, but can that be accurate with a high ratio, speckled pattern, low c4 complement levels and many symptoms! I do not feel well, nor do I feel like I used to. I really feel think something else is going on, but some of the doctors seem disinterested. I did go to a local hospital for people without insurance..could this be why I don't feel satisfied for the care. I want to get a second opinion, but they are trained in this area, and they should know. Also, I feel more and more crazy everyday from all of the stress and people thinking its in my head!
Sorry I wrote a book, meant to just recap results, but I am really in need of some help. Any suggestions would be greatly appreciated!! Thanks and hope you all are doing well!
Sorry I wrote a book, meant to just recap results, but I am really in need of some help. Any suggestions would be greatly appreciated!! Thanks and hope you all are doing well!
