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Discussion Starter · #1 ·
Hi all

After spending lots of time reading on here and still got lots more to read and take in i had a good think yesterday and a chat with my now smug looking other half (told you so expression you know the one...)

I have decided to take some positive steps to establishing whats happening after ignoring it for the last 4 years.. I am going to try and find a lupus specialist preferably local to me in south wales (uk) way as i really cannot afford to travel too far! But before i see him i think i should try and write down everything i am finding happening so he can help me sort out whats happening and discover if its lupus related..

As i have mentioned before I have tended to ignore the little niggles and the feeling of just feeling ill and have mentally blocked it all out where possible..when i feel well its easy but i am finding in the last ear or so i have just had more and more 'bad' days as i call them to the point where it has affected my love life and my so very understanding partner...

I suffer with the most excrutiating stomach pains. I was also diagnosed with trigeminal neuralgia last year but these type of pains are now coming in my back and my hips they really do take your beath away i dont know if its related to be honest.. Plus theres the 'low' feeling and sometimes wishing i could just disappear off the face of the planet (but not die..) if you know what i mean it may not always last long but its hard for me to cope with when i am such an optimistic person...i dont want to feel like that its not concious thought it takes me over (i hope this makes sense?)

Anyway thats just a little bit of it but i just wanted to say thank you for being here as i do feel a little like a weight has been lifted of my shoulders right now Thank you xoxox
 

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Hello there deehambley,

What a nice positive post :)

I always find that the worst times for me are those where I seem to be going around in circles or not being able to take action for whatever reason - it may be waiting for results, waiting for new meds to maybe work, waiting for a let up in symptoms... but as soon as I feel I can DO something to change my situation, however small, it's a wonderful help and I feel as if I have some control over what's happening to me.

It sounds like you have found your way to take action - Go for it!!

I also know what you mean about not conciously feeling down but it does just tend to take over at times. I think we have all felt that way to a greater or lesser extent at times. I am extremely fortunate not to suffer from depression itself but am very well aware that it can be an integral part of the disease and wouldn't hesitate to act if those short spells became more frequent or longer in duration.
It sounds like you are experiencing something very similar - I hope that for you too those spells are not too frequent and that this step of taking action will help you to feel better and in more control.

hugs and strength :hug:
Katharine
 

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Discussion Starter · #4 ·
lol thank you lola i have decided at the moment anyway conciously not to look at writing it all down as a negative thing but as a straightening out and sorting the wheat from the chaff if you will excuse the expression lol but i have the most supportive partner to and i have no doubt he is bored of listening to it all but maybe he will help me too as it was really him that has made me look to find this GREAT place to just have a whinge if nothing else hee hee (prob so he doesn't hve to listen :rotfl: ).
Thank you too Katharine its nice (in a good way) to know i am not the only one that feels like it i have felt so alone and like a bit of a freak so it truly helps to hear other peoples stories too i keep reading stuff though and finding it all so familiar which i am not sure is a good thing!? (I hope you know what i mean):)
 

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Yes yes, I do know what you mean and it is a good thing to know that you are not alone. Obviously, that doesn't mean that we wish being ill on anyone else but as they say "a problem shared..."

keep cheerful,
Katharine
 
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