Hi all
After spending lots of time reading on here and still got lots more to read and take in i had a good think yesterday and a chat with my now smug looking other half (told you so expression you know the one...)
I have decided to take some positive steps to establishing whats happening after ignoring it for the last 4 years.. I am going to try and find a lupus specialist preferably local to me in south wales (uk) way as i really cannot afford to travel too far! But before i see him i think i should try and write down everything i am finding happening so he can help me sort out whats happening and discover if its lupus related..
As i have mentioned before I have tended to ignore the little niggles and the feeling of just feeling ill and have mentally blocked it all out where possible..when i feel well its easy but i am finding in the last ear or so i have just had more and more 'bad' days as i call them to the point where it has affected my love life and my so very understanding partner...
I suffer with the most excrutiating stomach pains. I was also diagnosed with trigeminal neuralgia last year but these type of pains are now coming in my back and my hips they really do take your beath away i dont know if its related to be honest.. Plus theres the 'low' feeling and sometimes wishing i could just disappear off the face of the planet (but not die..) if you know what i mean it may not always last long but its hard for me to cope with when i am such an optimistic person...i dont want to feel like that its not concious thought it takes me over (i hope this makes sense?)
Anyway thats just a little bit of it but i just wanted to say thank you for being here as i do feel a little like a weight has been lifted of my shoulders right now Thank you xoxox
After spending lots of time reading on here and still got lots more to read and take in i had a good think yesterday and a chat with my now smug looking other half (told you so expression you know the one...)
I have decided to take some positive steps to establishing whats happening after ignoring it for the last 4 years.. I am going to try and find a lupus specialist preferably local to me in south wales (uk) way as i really cannot afford to travel too far! But before i see him i think i should try and write down everything i am finding happening so he can help me sort out whats happening and discover if its lupus related..
As i have mentioned before I have tended to ignore the little niggles and the feeling of just feeling ill and have mentally blocked it all out where possible..when i feel well its easy but i am finding in the last ear or so i have just had more and more 'bad' days as i call them to the point where it has affected my love life and my so very understanding partner...
I suffer with the most excrutiating stomach pains. I was also diagnosed with trigeminal neuralgia last year but these type of pains are now coming in my back and my hips they really do take your beath away i dont know if its related to be honest.. Plus theres the 'low' feeling and sometimes wishing i could just disappear off the face of the planet (but not die..) if you know what i mean it may not always last long but its hard for me to cope with when i am such an optimistic person...i dont want to feel like that its not concious thought it takes me over (i hope this makes sense?)
Anyway thats just a little bit of it but i just wanted to say thank you for being here as i do feel a little like a weight has been lifted of my shoulders right now Thank you xoxox