The Lupus Forum banner
1 - 8 of 8 Posts

·
Registered
Joined
·
4 Posts
Discussion Starter · #1 ·
I recently had an ANA test done due to my infection on my face not healing like my dermatologist thought it should. The rash started in June. I went to the Dr. and was told it was dermatitis. It did not go away - went back to Dr. told it was folliculitis. It did not clear up either so they did a biopsy of it and I was told it was a staph infection. Been on antibiotics on and off since June and topical meds. Dr. finally decided to do a CBC and ANA blood test and I was ANA positive. My doctor referred me to a Rhem doctor, but they can't see me until November? That seems too far away to me. Any suggestions on managing my sanity until I have my appointment.
 

·
Moderator
Joined
·
11,410 Posts
Welcome dsrambo,

You could start a daily symptom journal, write when you got a rash or what ever happens, take a pic or anything to take along to the doctor. Then write down how long it lasted.

It is hard to be patient when we want to know now what is going on. Maybe you could call and ask to be put on the cancellation list. Was it your doctor that made the appointment for you or did you do it? If you did it maybe your GP could make a call and get you in sooner?

When they did your biopsy did they test it for lupus? Some members here were diagnosed with SLE threw a skin biopsy.

Take care,
Lyn
 

·
Registered
Joined
·
1,835 Posts
All I can suggest is that you call the dr's office and make real nice with the appointment scheduler...ask if there are any cancellations sooner, that you are frightened and would appreciate some answers. If there aren't any cancellations, and your schedule will allow, ask to be on the cancellation waiit list...and take anything that opens...

Hope you have some luck - Stephanie
 

·
Registered
Joined
·
7,800 Posts
Hi there and welcome :)

I know that waiting is extremely frustrating when you want answers. It's pretty typical to have to wait at least three months for an appointment with a rheumy and it is often better to have to wait a bit and try and see someone specialised in auto-immune diseases rather than just whoever is available.

I hope the appointment goes well for you and you start to get some answers.

bye for now,
Katharine
 

·
Registered
Joined
·
4 Posts
Discussion Starter · #5 ·
Thanks!

I did get on the cancellation list. The scheduler took down my info about me having the rash for so long and that this was probably not a false positive situation. She told me I could call every day if I wanted that she did not mind because she understood my urgency. My dermatologist's nurse that I have been dealing with also helped alot - she has Lupus herself and was very helpful. She is the one who told me about this site. I will keep reading and educating myself on this! Thanks for the great comments and suggestions.
 

·
Registered
Joined
·
3,033 Posts
thast good hope u get in soon,i waited 6 months to get in despite already being seen by a rheumy and gp ahd faxed him to.
mind u he made up for it whens aw me lots tests ect and explained can only see rheumatoid discease patients every 6 months.


do join us in chat room its fun fab lv countrylass
 

·
Registered
Joined
·
52 Posts
hi,

I'm in the same boat my neurologists appointment is on November 3rd. I really thought i was going mad until my optician found my optical nerves inflamed and told me if i was mad he must be seeing things.

I have decided to start planning Christmas, and take things one day at time, because at the moment each day is different.

I have started to believe in myself and all the weird and wonderful things which have happened to me especially in the last three months will make you stronger.

Natasha
 
1 - 8 of 8 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top