Hi Everyone,
I couldn't think of a shorter title as I wanted to get as many responses as I can to this one!
I have been in a flare for approx 1 month, haven't flared properly as in a long flare for 8 years now!! Wow huh.
Anyway, my GP has put me on 50 mg of prednisilone a day for 3 days and now I have reduced to 25 mg a day.
Since starting the pred I almost immediatly lost the terrible joint and muscle aches and felt much better to be out of such pain - as you can imagine. It was a real lift.
Today I am on the reduced rate of 25 mg (tablet taken 5 hours ago) and I am not sure if it is in my head or not - but........I feel like I am going backwards already!! Would that be right?
My wrists and fingers are aching and my muscles are becoming sore again. The other problem is that I am feeling slightly anxious with butterfly's in my tummy and chest and have slight palputations. Again......is this in my head!!!! Or is it a common withdrawal symptom when lowering dose rates of pred.
I hate being so out of control and not being able to work out what is going on. I can't reach my GP as she has gone on holiday for the Easter break.
I am so hoping someone can give me some advice. It is such an eye opener finding this site on the weekend and speaking to people who understand. In the 30 years I have had SLE this is the first time I feel like I am safe in speaking about it.
Thanks in advance. Sending best wishes and good health to everyone.
I couldn't think of a shorter title as I wanted to get as many responses as I can to this one!
I have been in a flare for approx 1 month, haven't flared properly as in a long flare for 8 years now!! Wow huh.
Anyway, my GP has put me on 50 mg of prednisilone a day for 3 days and now I have reduced to 25 mg a day.
Since starting the pred I almost immediatly lost the terrible joint and muscle aches and felt much better to be out of such pain - as you can imagine. It was a real lift.
Today I am on the reduced rate of 25 mg (tablet taken 5 hours ago) and I am not sure if it is in my head or not - but........I feel like I am going backwards already!! Would that be right?
My wrists and fingers are aching and my muscles are becoming sore again. The other problem is that I am feeling slightly anxious with butterfly's in my tummy and chest and have slight palputations. Again......is this in my head!!!! Or is it a common withdrawal symptom when lowering dose rates of pred.
I hate being so out of control and not being able to work out what is going on. I can't reach my GP as she has gone on holiday for the Easter break.
I am so hoping someone can give me some advice. It is such an eye opener finding this site on the weekend and speaking to people who understand. In the 30 years I have had SLE this is the first time I feel like I am safe in speaking about it.
Thanks in advance. Sending best wishes and good health to everyone.