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I have not been her for awhile,computer trouble.Well my new reumy took me off prednisone, i am not sure how this is gonna go,this is my first week without it.Also had my blood work done and my hgt is down to 8.5 so now i have to see a blood spec,also they did another mri and it showed my small vessels in my brain are closing,go for my ssi hearing jan 31 .Does any one have any advice i will be donig a spinal the begining of march.a ny help would be great.
 

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Hi Warisosa nice to see you again :)

Are you still on the Cellcept and what dosage? Do they think your condition has stabilised at all, I know your old doc moved and these are newer docs but they do realise just how ill you have been dont they?

It seems strange to be reducing the Prednisone if you are still having lots of problems with your brain and nervous system? But then I dont know the whole story and your docs may have a very good reason for doing this. I hope you are happy with them?

Good luck with your spinal, did you have one before, I know it was mentioned?

love
Lily
 
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