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Discussion Starter #1
Has anyone found a medication that works for profound fatigue?
I have heard that Provigil/Modafinil is sometimes prescribed for fatigue - anyone here with experience with this medication?
I am on Plaquenil (Hydroxychloroquine) but it has no effect whatsoever on the fatigue/joint pain :sad:

Thanks
 

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Hi,

A few years ago I tried Provigil. It definitely gave me an energy boost, but the side effects were miserable.

How long have you been on Plaquenil?

Take care,
Lazylegs
 

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I am different then lazylegs in that Provigil works wonders for me. It has helped a lot with fatigue and I could not get by without it. How long have you been taking Plaquenil?
 

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Hi, I didn't know that there was anything out there for fatigue, I am on Plaquinel,
and have been for years, and yes I am constantly fatiguged. I am going to look
into Provigl. I am very sorry that you have been having so much trouble with
fatigue. Get plenty of rest when you can, and the things that you "have" to get
get done, just pace yourself and don't do too much at once.
 

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Discussion Starter #5
re: how long on Plaquenil

Thanks for replying :)

I have been taking Plaquenil for at least 5 years. I haven't experienced any improvement with fatigue or joint pain. I am still taking it as it was the only
thing offered by the rheumatologist. (I couldn't tolerate steroids).

I have been finding it really difficult to cope with the fatigue, joint pain, secondary Sjogren's over the past few months. I just want to sleep all the time :sad:

Any advice would be appreciated.

Thanks
 

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Hi there,
I didn't think anything helped fatigue either, in fact my doctor said there was nothing that could be done about fatigue except a change in lifestyle, rest etc. I would love to find something that would help. Plaquenil definitely does not help me and I've been on it for over 10 years.

Angie
 

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Another medication can be added to the Plaquenil that may help with fatigue and joint pain, the first one I would want to try is mepacrine/quinacrine. Many will report the combination is energizing and helps with multiple symptoms of lupus.

My doctors I've gone to do not seem to want to prescribe it for some reason.... Not sure why but I've asked twice and been turned down twice without any reason given!

The doctors here also do not like to prescribe Provigil for a few different reasons. One, it is very expensive and many insurance plans will not cover it unless used for the officially licensed use (narcolepsy). Two, it has not been found to be *that* effective in the majority of people especially if you compare it to a jolt of caffeine it does about the same thing. And third, long term daily use could have side effects and could possibly make lupus worse in that you may not listen to your body's message to rest as much as you should.

Personally, I would not use Provigil daily even if I had the option. I would reserve it for rare/special occasions. But I am conservative in medicine use, and am now able to rest/lie down as needed by and large. ;)
 

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hi lincs lass
i am also taking plaquenil.and it has no effect on my fatigue what so ever.but i was told it can take up to 6 months to work.but i have been taking plaquenil longer than 6months now.and still fill no better.
 

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Hi I've been taking plaquenil for 5 years now and to be honest it hasn't done anything for the fatigue. Though I'm not sure that's what it is meant for. For joint pain I've been taking arthrotec which does have some effect on joint pain though it doesn't eliminate it completely. As NSAIDs can cause stomach problems it has a built in protector. I'm now on a low dose of steroids -they have given me a bit more energy and have been very effective in reducing inflammation giving me more relief from joint pain than I've ever had before. I've only been on them a month but already I'm getting pain free days. I do notice that by the end of the day I'm just as exhausted as I was before and the pain is starting up again but I'm grateful for the relief during the day when I need it most.

I hope you get a solution to your pain & fatigues problems, ut I guess more rest may be the answer.
Lis :)
 
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