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From what you write it does sound a lot like you may well have APS (hughes syndrome or sticky blood).

Read up a bit about it before your haematologist appointment.

The majority of people with APS have it as a primary disease - ie just APS. It is possible to have it as a secondary disease to another autoimmune problem. About 1/3 or people with lupus also have APS (hence that confusing name lupus anticoagulant).
If you are concerned that there is more going on than just APS, ask for a referal to a rheumatologist.

Let us know how you are getting on,

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