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Do you generally get the same symptoms each time you start to flare? I ask because I have always had the same ones--my pericarditis flaring up and joint pain, bad anemia, extra protein in urine and some fatigue. I never had fevers---UNTIL....just recently
For five weeks I had high fevers that couldn't be controlled by steroids. Dr. finally admitted me to hospital. I also was leaking a lot of protein, platelets were low, and my white blood cell count was very low. Thank God I got to the hospital when I did. Thankfully, my low WBC count has gone up some in the past two weeks and the fevers are gone (THANK GOD!), but now I have to wonder if this is going to be what I have to watch out for in the future. That was pretty scary having those fevers and such a low WBC because there is no immunosuppressant they can give me that will not lower the WBC even lower, so it was a wait and see and hope kind of thing. At one point I was even up to 150 mg prednisone/day with no relief in symptoms.
I have never had many of the typical lupus symptoms others get. I don't get extremely fatigued or aches and pains (except for joints sometimes and chronic chest pain). I don't get any kind of rashes, ulcers, etc. And until recently, I had never gotten fevers with the lupus that I knew of, even low-grade ones.
So, once you start getting these new symptoms, do you find yourself getting the same ones again with a flare? Because if this is the case, maybe we could catch this next time before my WBCs get so low!
 

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My flare symptoms tend to stay the same, occasionally something different gets thrown in (like Chilblains). But usually my flare symptoms are joint pain, fatigue, rash, pleuritis and low grade fever. I had a spell where I also had symptoms of cystitis for a few months here and there (not sure of cause...) but it hasn't occurred every time since then. I've had a spell where I was spilling protein for a while too but that has eased now possibly due to medication.

I would think... if there is a next time with a high fever... then everyone will be on the lookout and investigating the WBC count, etc. But I don't think that this one incident means from here on out - your flare will be like this one. Mostly because that hasn't been my experience, and this isn't called the disease of 1000 faces for nothing!
 

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Hi Laura, For me, the only thing that remains constant with my flares is that they all hurt and make all the small things a very big deal. Some flares will set off a migraine, some just hurt like the devil, and some I want to be in bed under the covers and not eat or do anything. Each is different. Be well.
 
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